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Type: Posts; User: Susan Jean

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    Re: Infections from mosquito bites

    The pred would stifle any reaction to a bite. This summer I got stung in 5 places from a yellow jacket. I did not experience any swelling and the pain was much less than normal. Pred would do the...
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    Re: Your Thoughts on Dying.

    I was diagnosed in Feb. of this year and when I found out I would have been on my death bed 50 years ago, I was shocked. I am so glad to be alive! I am very thankful that I have doctors that figured...
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    Re: Thoughts About Breakup Reconciliation?

    Of all the people I know, only one couple got back together after separating for a year. They are still together 15 years later. During the breakup time, they each had an affair but still did things...
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    Wegener's and surgery

    Has anyone had surgery after diagnosis?
    How do you get ready? Do you have to be in remission? or at least your SED rate being lower if not normal?
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    Re: Welcome new members!!

    Welcome! Glad you found us. :rolleyes1:
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    Re: New to Wegener's, new to the forum

    I just finished my second of four Rituxan infusions. They both went well. I've been able to cut my prednisone down a little after each infusion without my symptoms coming back so that must mean it's...
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    Re: send good energy and prayers my way

    Thank you all. Everything went very well with my first infusion. I started to have a little reaction (my mouth and throat began to tingle and feel strange) and told the nurse. She jumped right on it,...
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    send good energy and prayers my way

    :thumbup:I'm having my first Rituxan infusion today (1 of 4). I'm scared of having a reaction and hope it all goes well. I'm taking books, my laptop, coloring book, lunch, snacks, drinks, masks,...
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    Re: New to Wegener's, new to the forum

    And thanks to Andrew as well. I begin my first Rituxan infusion in a week.
  10. Thread: Transplant

    by Susan Jean
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    Re: Transplant

    I gave my husband a kidney 12 years ago so you have a special place in my heart. He is still doing well and his function is about 55%. Glad you're feeling good and that you're able to manage a veggie...
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    Re: New to Wegener's, new to the forum

    Thanks for your encouragement, Masha!
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    New to Wegener's, new to the forum

    I am already so thankful for this forum because of everyone's friendliness and all the info that is available. I'm learning a lot!
    In October 2017, we lost our home and everything in it to the Tubbs...
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