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Type: Posts; User: nancytuesday

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  1. Re: Anyone here receive Evusheld for covid prevention?

    Fantastic and congratulations - Greg is great! I received mine yesterday as well. No side effects at all for me. I am going to try to get my antibodies checked in blood in a few weeks - I am...
  2. Re: Anyone here receive Evusheld for covid prevention?

    Here is the NC page that shows all the providers. You will need a prescription from your doctor - so I would get that first if you can. I talked to the Oakhurst pharmacist. He has some but has not...
  3. Re: Anyone here receive Evusheld for covid prevention?

    Yes. Charlotte.
  4. Re: Anyone here receive Evusheld for covid prevention?

    If you are interested here is a petition for the US government to purchase more Evusheld: ...
  5. AZ antiboy treatment approved for immunocompromised

    I just saw this posted and wanted to pass it along. I don't know if we will qualify - but I thought I would let everyone know in case. I am going to speak with my Dr next week about it.
    ...
  6. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I have had three negative serum COVID tests after being vaccinated in March/April. I did a T-Detect test and that did show a positive response - but you have to pay for the test yourself (is not...
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    Re: Vasculitis Symposium

    I am hoping to go. I have never been to this conference but have been to many for a different rare disease.
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    Re: Need a referral

    Thanks for the immediate response and for the advice!
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    Need a referral

    Hi all!

    I hoping you can provide some insight and direction. I was diagnosed with Wegener's a year ago. Not a classical presentation but I am C-Anka and P3 positive. I have so far opted not to...
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    Nice NYTimes article on chronic disease

    Read this today and it resonated with me -- as I have only been part of the Wegs community for less than a year. Thought I would pass it along. "Five Things I Wish I'd Known Before My Chronic...
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