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    That is SO wonderful to hear! We are also happy...

    That is SO wonderful to hear! We are also happy with our experiences there! Dr. Nachman in the nephology dept. is our doctor and he has added Mitch to two trial studies currently taking place...
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    Well stated info, Jack. I can never see Mitch...

    Well stated info, Jack. I can never see Mitch going back to his former state. This was in the back of my mind, but enlightening to actually hear someone voice it. D.
  3. It DOES truly SUCK!!!!! Ok, that was my scream...

    It DOES truly SUCK!!!!! Ok, that was my scream for the night!!! Happy for all of you who can compose yourselves better than I. Danell (Mitch's wife)
    :w00t:
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    Pardon, me....assuming it's you..otherwise, that...

    Pardon, me....assuming it's you..otherwise, that was a rude remark on my part...and I'm sorry if that is the case.
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    HAAAAAAAAAAAAAAA! This is a...

    HAAAAAAAAAAAAAAA! This is a hoot!!!:laugh::laugh::laugh:
  6. Thread: new to site

    by Mitch
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    I'm so glad your numbness is getting better. ...

    I'm so glad your numbness is getting better. The prob with Mitch is that one foot is totally dead half-way up his leg. The docs are most concerned about this. They say they can control...
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    Deb Roy, I have received sooo much help from...

    Deb Roy, I have received sooo much help from these wonderful people. Yes! Things will get worse before they get better for your dad. As they have all said , be sure you find a Wegs specialist. In...
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    Vasculitis Foundation Symposium

    There is a patient and family symposium hosted by the Vasculisis Foundation planned for Sat. May 14th in Chapel Hill, NC. To register, call 800.277.9474 or go to...
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    Chas, my husband, Mitch, is a part owner of an...

    Chas, my husband, Mitch, is a part owner of an embroiderery business...lots of fabric dust floating around in the air. His brother owned a printing business for 20 yrs. and is now in line for lung...
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    I am soooo freakin' happy for you!!!! Dr....

    I am soooo freakin' happy for you!!!! Dr. Nachman is such a kind and caring person. If you go to the NC Memorial Hosp. and check him out, you will see that vasculitis, whether it be ANCA related or...
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    Like you, I first checked in the rheumatology...

    Like you, I first checked in the rheumatology dept. at UNC and saw nothing there...no one who specialized in any type of vasculitis, so I dismissed that hospital. Our pulmonologist made the the...
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    Stephanie, so glad you wrote. I would imagine...

    Stephanie, so glad you wrote. I would imagine your husband would need a referral; however, I don't know this for a fact. Why don't you have your ENT or whomever made the diagnosis make the call? I...
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    Thank you, Sangye! Yes, I do have the literature...

    Thank you, Sangye! Yes, I do have the literature on the VF Symposium; however, I haven't read it thoroughly so I was unaware that Dr. Nachman is one of the speakers. Pretty impressive!! I hope we'll...
  14. Thread: Caregivers

    by Mitch
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    Thanks so much, Palmyra. Yes, I have tried to...

    Thanks so much, Palmyra. Yes, I have tried to make myself as knowledgable on the subject as possible. In fact, I began questioning the doctors, and, needless to say, some became quite irritated....
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    I'm learning, as a caregiver from you. I'll pass...

    I'm learning, as a caregiver from you. I'll pass this on to my husband, the patient....Thanks
  16. Thread: Caregivers

    by Mitch
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    I feel overwhelmed at this moment by your...

    I feel overwhelmed at this moment by your kindness, Palmyra. We have so many good friends here in this small town who help us so very much; however, these kind folks don't know what we're going...
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    OMG! I didn't know where the shaky hands were...

    OMG! I didn't know where the shaky hands were coming from! Thanks!
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    As long as you have a situation that you're happy...

    As long as you have a situation that you're happy with, I say stick with it. You sound like you're in a good place concerning docs. We were fluttering around with no one in charge...and basically...
  19. Thread: Caregivers

    by Mitch
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    I still haven't mastered this site; however, I...

    I still haven't mastered this site; however, I think/hope I'm in the right place. Palmyra, I, too, have a daughter who is grown and married, so I can identify with what you are saying. I'm trying...
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    New for the South

    A pulmonogist sent us to NC Memorial in Chapel Hill, NC. I had looked this up under the rheumatogy area and had found no significant info there. As it turns out, all of the research regarding...
  21. Thread: Caregivers

    by Mitch
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    This is Danell, Dagger, and it will always be...

    This is Danell, Dagger, and it will always be Danell because Mitch is mostly in a slumber mode. We're in a different part of our lives than you are...from seeing your photos. You're probably young...
  22. Thread: Caregivers

    by Mitch
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    Let's do it!

    Let's do it!
  23. Thread: Low Grade Fevers

    by Mitch
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    Thank you, Daggar! Thank you soooo much!

    Thank you, Daggar! Thank you soooo much!
  24. Thread: Low Grade Fevers

    by Mitch
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    I'm writing this in hopes that DRZ, Richard,...

    I'm writing this in hopes that DRZ, Richard, Dagger and you, Lily, will all see this. Because of what you've all posted, I WILL on Monday call our internist and see that he makes an appt. with Dr....
  25. Thread: Low Grade Fevers

    by Mitch
    Replies
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    Richard, I am no doctor, but I do believe that...

    Richard, I am no doctor, but I do believe that Mitch does have active Wegs...the neuropathy has spread in TWO days to other fingers. I would think this would be a sign...along with the low-grade...
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