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    Re: Help for echoing in ear?

    I don’t have echoing, but I have pretty loud ringing that wakes me at times. Let us know if you get a diagnosis.
  2. Re: It's Obinutuzumab or Bust! Second generation anti-CD20 monoclonal antibodies.

    I pray this works well…
  3. Thread: Newly Diagnosed

    by J@$0N
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    Re: Newly Diagnosed

    Sorry to hear about all you are going through. I don't understand doctors telling you not to ask questions. I was very fortunate with my Rheumatologist.. he and his nurse are very knowledgeable and...
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    Re: Early Stages GPA Treatment

    Sorry to hear the RT didn't work. Mine presented in my aorta and I was given 1000mg of RT once a week for 4 weeks and again every 6 months after until my ANCA wasn't showing. Like others have said,...
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    Re: Early Stages GPA Treatment

    How many Rituxan treatments did you have?
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    Re: GPA - New Symtoms

    Just had an opportunity to go back through the thread. Rituxan is what I was put on right away... I hope you are seeing improvements.

    ``` Thank you for that.. I went to my PCP the other day for...
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    Re: GPA - New Symtoms

    Were you treated in 2021? I have bloodwork every three months unless the dr and I feel it necessary to go sooner. I've just had similar pains that may stem from other issues. It is just really hard...
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    Re: GPA - New Symtoms

    Did the symptoms progress quickly? I've been having joint and other pain, but it seems to ease up and not as persistent. Mine having started in my aorta gets me a little riled up from almost any...
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    Re: Recovering from symptoms question

    I had issues with recovering from medication and side effects and became difficult to discern. I was given 875mg of Rituxan once a week for four weeks and then every 6 months until i went in to...
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    Re: GPA - New Symtoms

    How do you determine a flare vs relapse and so on.. I've been having similar issues with joint pain from when mine started and uncertain of just wear and tear from getting older. How often do you...
  11. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I never got the “vax” and ended up getting Covid in late August of 2021.. they gave me the monoclonal antibodies and I pulled through well. September of 2021 I had my last RTXN infusion and have been...
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    Sticky: Re: How to know when you're having a flare

    It is interesting how differently it effects individuals. I had a round of RTX once a week for 4 weeks and then every 6 months. My ANCA was still positive at the time I contracted COVID and was...
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    Sticky: Re: How to know when you're having a flare

    Just to make sure I’m on the same page.. RTX is Rituxan, correct? How many initial doses did you have? My body couldn’t handle AZA and was tapered off prednisone after a few months of RTX..
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    Sticky: Re: How to know when you're having a flare

    All of my other blood work is good as well.. its a bit harder for me to tell since it affected my aorta and hadn't reached the other organs yet. I also have 4 protruding discs in my neck and...
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    Sticky: Re: How to know when you're having a flare

    I'm no longer getting RTX infusions. My ANCA numbers have been negative for the past 9 months. This is why I was curious to the groups thoughts.
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    Sticky: Re: How to know when you're having a flare

    How is a flare different from a relapse? I was labeled as "in remission" in Oct-Nov last year. Since I have had good blood work, but recently having a bit of joint and muscle pain again along with...
  17. Re: Some questions my doctor hasn't answered (well a lot of questions LOL)

    How often do flare ups happen after remission and does that cause the need for the return of Rituxan?
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    Re: Covid vaccins and WG

    I had my antibodies tested after I had COVID. I contracted the virus literally 5 months after my last infusion and was a month away from the next. I was given the monoclonal antibodies and recovered...
  19. Thread: Third Vaccine

    by J@$0N
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    Re: Third Vaccine

    I have not had the vaccine but contracted Delta in Augusta and was given the antibody therapy. I caught it right at one month before my Rituxan infusion. I decided to test for antibodies and was...
  20. Thread: Third Vaccine

    by J@$0N
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    Re: Third Vaccine

    Wow.. before my diagnosis I had some issues with my eyes. My main issue was inflammation of my aorta. I was told the combo of that and wegs was rare, but definitely not as rare as yours. How long was...
  21. Thread: Third Vaccine

    by J@$0N
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    Re: Third Vaccine

    Were you in remission before the jab?
  22. Thread: Avacopan

    by J@$0N
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    Re: Avacopan

    Wow.. that is extremely disappointing. It is all about the money!
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    Re: Cyclophosphamide (Cytoxan)

    How was your blood work, like your CRP, ANCA, and PR3?
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    Re: Any Weggies in Atlanta?

    I’m in southeast TN.
  25. Re: Tinnitus got significantly worse after 1st Rituxan infusion, thoughts?

    Did you take the vaccine or just from having COVID?
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