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  1. Thread: Transplant

    by Alysia
    Replies
    276
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    32,710

    Re: Transplant

    Maybe your symptoms were not covid19 ? They don't sound like it, as far as I understand.

    I am glad you are safe.
  2. Thread: Transplant

    by Alysia
    Replies
    276
    Views
    32,710

    Re: Transplant

    I am glad your numbers are much better. Thank God. Praying your ALT will be better too.

    What covid19 symptoms did you have ?
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    Re: Coronavirus and GPA

    Thank you for being here, my beautiful friends, and for your encouragement, kindness and wisdom. I love you. Sorry for not writing earlier. I've been so scared in the last month that even reading and...
  4. Thread: Here I go

    by Alysia
    Replies
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    361

    Re: Here I go

    Welcome to the forum, Annmarie.

    P-anca and MPO positive are usually related to MPA while C-anca and pr3 positive are related to GPA. Check here...
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    Re: I got a 2020 Present!

    Sorry about that "gift" :thumbdn:
    I don't know anything about it.
    I just wanted to tell that my wg dr. Says that while being on the pred, and going for a surgery, we need to take higher dose for...
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    Re: Cataract Surgery

    An update: :cool1:

    I've found a wonderful eye surgeon. Couple of months ago he operated my father and healed his vision against all odds. So, on 6 January I went to my second cataract surgery -...
  7. Thread: Transplant

    by Alysia
    Replies
    276
    Views
    32,710

    Re: Transplant

    Thanks for the update, Pete. I am glad your kidney is stable after all, and I keep you in my prayers.

    I've found out that lack of vitamin C can also cause joints pains. Can you check your vitamin...
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    Re: Happy birthday to me

    Happy beleted birthday, Masha :hug1:
    (Sorry for not writing earlier).

    I consider wg as a gift because through it I've found amy sweet eternal love and the true Faith. Also some wonderful AMAZING...
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    Re: Diagnosed a year and a half ago

    Welcome to the forum, Randy, and thank you for sharing your story. It is amazing how you diagnosed yourself on you own.
    It is also interesting that you have developped a saddle nose without much...
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    Re: Recent Diagnosis

    Welcome to the forum.
    I hope your rtx treatment went well.
    Please consider that being on high pred can cause us more anger and being more emotional. When you reduce the pred, do it very...
  11. Re: prescription process- the path from the Dr to the Pharmacy

    Like I told my dr.: "I must be healthy in order to be sick".
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    Re: Happy Healthy New Year

    I use this thread to ask how our aussies friends are doing out there with the fires and the heavy smoke... my heart goes out to you, I am worried..... praying for the people and for the animals.
    I...
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    Re: What is the smallest dose of Rituxan?

    @anne, you are right. we had a good discussion about the bactrim, in this thread, at page 4 there is some good info by @me2.
    ...
  14. Re: shankxonline - My path to identify GPA and overcome it

    Hi,
    On 2015 I had a wg flare in my eyes. I caught it "on time" so it was only episcleritis. (Lighter then scleritis).
    Sounds like your wg is active and that you need a stronger med. Mtx is not...
  15. Re: How many got the Wegners or GPA Dx without a bx?

    Hi Brad,
    I got the wg diagnosis without biopsy. 2 nose biopsies turned out false negative. My dr. Made a case consultation about me and got the diagnosis. But I had the classic symptoms of wg -...
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    Re: Happy Healthy New Year

    Thanks, Masha. Healthy New Year, and also Happy New Year. We can be joyful even if we are not healthy.
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    Re: What is the smallest dose of Rituxan?

    Hi Kirk,
    So sorry that your wg is flaring :thumbdn:
    My wg dr. Talked about 500mg as a possibly affective minimum doze. BUT I guess it depends on the patient and his wg. For me 500mg isn't enough....
  18. Thread: Transplant

    by Alysia
    Replies
    276
    Views
    32,710

    Re: Transplant

    Thanks for the great update ! Merry Christmas and blessed new year !
  19. Replies
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    Re: Happy Birthdays Thread

    Hi Jeto, nice to see you here. So glad you have a work. Are you in Macedonia now ? How is your health ? How is your family ? I pray for you. Thank you for your caring. God bless you.
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    Re: Symptoms DURING remission.

    Hi Kirk,

    I am so sorry you are suffering this much.

    I know 3 weggies who suffer from subglotic stenosis even while their wg is considered to be in remission, up to the point where they need...
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    Re: Split decision on diagnosis

    Welcome to the forum, Aaron,

    Lack of G6PD is not related to WG. My father and my 2 sons have it. They don't have WG. However, there are some medicines which you are not allowed to take, one of...
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    Re: In process of being diagnosed

    Some docs use the "limited GPA" concept when there is no kidneys' involvement. But we all know that WG can be life risking even without kidneys' involvement and that it can spread to more vital...
  23. Thread: 20 year old son

    by Alysia
    Replies
    233
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    19,130

    Re: 20 year old son

    Thanks for the update. Sounds like Yosef is in good hands.

    I know few weggies who get Ivig treatment.
    Read here for some explanation
    https://www.webmd.com/a-to-z-guides/immunoglobulin-therapy...
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    Re: Happy Birthdays Thread

    Happy Birthday andrew from pberggren1 and from me. We love you and are grateful to you. Thank you so much for keeping the forum working so well and so long. Words are not enough to express our...
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    Re: In process of being diagnosed

    Welcome to the forum, Lea.

    As far as I know, it takes 6 weeks for mtx to start working. Reducing the pred should be careful and gradual according to your improvements.

    The concept of 'Limited...
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