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I am down to 6 ml on the predizone going to 5 and staying there for awhile.

Thanks Pete! That helps a lot. You can read all you want but nothing is better than talking to someone who has been there. I will make sure they do the test. I would have been pissed! I was on...

Finally after 16 months of 1st 10 months of Rituxan then 6 months of Cytoxan I will be transition to a matinance med. in June. Doc is leaning towards the Azathioprine. Other option being...

Thank you for sharing. Think I read once 7.5 ml. or less should not be to harmful.

Thank you for responding Natrice. That's where I am at now. Been a year now of being on predizone. Up and down and back up and back down! Inflammation markets are all up when having a flare and go...

Ok want to throw this out there and see if anyone else has had a similar experince. Started of A year ago with 4 IVs of rutixan. 80 ml prednisone. Tapering down on Prednisone but when ever I got...

Thank you Donna for sharing your experinice with me. Doctor just switched me from Ritaxium to Cytoxan. Apparently the Ritaxium wasn't working. Been pretty sick the last few days with stomach problems...

Thanks Pete. I will look into the folic acid if it comes down to that.

Thanks for sharing your experince. From what I am picking up the biggest danger is from a suppressed immune system. Same on both medications. Rituxan just wasn't getting the job done. When ever I...

Thanks Pete! That is encouraging news!

So Seen doc yesterday and going to stop Rituxan and start daily dose of Cytoxan. Can’t seem to get off the prednisone with out a flare. Anyone else gone this route? Anyone experience side effects...

She is a Rheumatoligst and she actually has quite a bit of experince with WG. She also has connections at Mayo Clinic in Minnesota. I think what the problem was is we are 80 miles apart and...

Yes it does help because all I ever got from the doctor is I don’t know why my this is happing but maybe the predizone. I researched tapering off predizone and found out that this can and does...

Hi Andrew, I have left a meager with the doctor that I would like to move the bloodwork up to today. I am really hoping for a no it's not a flare and I will just have to deal with the withdrawal...

HI, my name is Bob and I was diagnosed with Wegeners in January 2017. Immediately was put on 80 ml of predizone and 2 weeks later had my 1st IV of Rituxan. The predizone helped right away some but it...