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Thanks Mark for all your info on Mayo-very helpful. So glad you got there & are now receiving such great & thorough care!

Our daughters rheumy is also on the VF website-Nancy Allen @ Duke. Our daughter wanted a specialist somewhere close that she could drive due to time constraints & cost. We liked Dr Allen very much...

I want to thank all of you for your posts-they help so much & I feel your support & it means alot. We are in a strange place right now as the doctors do not think that the weg diag was correct. They...

I do not know where to begin...which is probably why it has taken me so long. We took our daughter to Duke on Dec 21 & met w/ Dr. Nancy Allen. We all liked her very much & felt good to be w/ a wg...

Thanks so much for your encouragement, I was curious -is your daughter doing the 4 or 2 treatments in a round of the rtx? I read w/ interest when Sangye reported on those 2 protocols. I also...

Thanks Elephant! Before moving to NC my daughter lived in Greenville. I remember reading somewhere that is where you are. I am in Anderson, so we are neighbors. We are still waiting for acceptance...

Sangye, we are going to Duke to (Rheumy) Dr. Nancy Allen this week. My daughter emailed her 2 wks. ago after meeting w/ the oncologist & asked her if she could get the ball rolling to see if she...

Jeff, there will be more good days. I know exactly what you mean when you said you could see her color come back. It's amazing...

Jeff-hello! Your post duplicates our recent experience w/ our daughter who is 26. There are so many similiarities. My heart breaks for y'all as I remember that 1st week after diagnosis. I hope...

Hello all, I have been following this site for abt 3 wks. now after my daughters diagnosis in Nov. This is not my 1st post . I told a bit of her story in early Dec. on Mel's intro post. I decided to...

Mel, It was so good to hear from you! Your situation sounds very similar to my daughter. Your protocol is what the pulm. told her - IV CTx w/ pred. then MTX w/ pred tapering ,( the lupron was an...

I so appreciate your input-she will be seeing Dr. Nancy Allen @ Duke. I originally contacted JH, Mayo, & CC but could not get her in until after the new yr. I could not get her in @ Duke either b/c...

I was very interested to read your intro-my daughter was diag early Nov. w/ Wegeners @26. We are still very much in the gathering info phase , she is on 60mg. of pred. she has been healing from her...