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    Re: New member diagnosed in January 2020

    Hello Susan B!! Welcome to the club nobody wants to join.

    You certainly had a time of it before dx. Glad to see you’re well on the way to recovery. Keep on keeping on.
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    Re: G'day Mate.. From Australia,Land down under

    Dutchie

    Welcome to the club nobody wants to join. Congrats on the triplets!! Hope they are doing well.

    Several folks on here have saddle noses. I’m tagging Alysia and annekat and hope they’ll...
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    Re: Ear, Nose and Eye involvement.

    JBee

    I had SLT on both eyes to relieve the pressure in my eyes about six months before wegs appeared. It’s a laser procedure to open the “drains” in the eyes. It’s painless and recovery is just a...
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    Re: Ear, Nose and Eye involvement.

    Hi dalatingod

    Welcome to the club nobody wants to join. Glad you found us, though.

    My GPA journey started similar to yours with an ear infection that wouldn’t respond to the usual treatment....
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    Re: Infections from mosquito bites

    A couple thoughts...

    Many of us weggies take bactrim as prophylaxis for PCP pneumonia. It’s a sulfa drug that should also help clear up systemic infections.

    Localized infections usually result...
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    Re: New Member from Indiana

    cbaker0812

    I was on methotrexate for about two years from 2012-14. I was taking 20-25 mg/week. After about 18 months, I thought the side effect of fatigue had become excessive. By then, I had been...
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    Re: New Member from Indiana

    The “highball” Dirty Don refers to is typically solumedrol (steroid), benadryl (antihistamine for possible allergic reaction), and tylenol. I’ve had 15+ infusions. The evening of the infusion, I...
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    Re: New Member ~ Phoenix, Az

    @ShellLeighScott

    Actually, you’re in better luck regards finding a local GPA specialist. Mayo Clinic has a facility in Phoenix that Dirty Don goes to. He’s doing pretty well, and I hope he’ll...
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    Re: New member from Canada

    Ljj

    Welcome to the club nobody wants to join. You'll find lots of info and support here.

    I was retired when GPA hit, so I didn't have that stressor in my life. I hope your employer will be...
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    Re: Flu shot or not during COVID 19?

    I got my flu shot early in September because my rheumy wanted me to get it before my rituximab on September 22.

    Vaccine is dead virus. I’ve been getting flu shots for at least 30 years and never...
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    Re: Diagnosed with GPA in Bonn - Germany

    ilias

    Wilkommen!! I’m glad you found us, but sad that you are so sick. GPA is so different in its presentation, and that makes it difficult to diagnose.

    I hope your vision will return. I don’t...
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    Re: Introducing myself

    Hi @Gram24

    Sorry to hear about your granddaughter. Sounds like she’s having a rough time with it. I hope she can get into remission soon!! Please keep us posted about her progress.

    This is a...
  13. Thread: Covid-19

    by Pete
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    Re: Covid-19

    Steroids reduces the severity and duration of COVIS-19.
  14. Thread: Happy Birthday

    by Pete
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    Re: Happy Birthday

    Happy birthday annekat!!
  15. Thread: Ear Wax

    by Pete
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    Re: Ear Wax

    I went to the OSU ENT Clinic to see what could be done about my ear wax issue. The audiologist found no issues with my hearing aids, but a quick look into my right ear confirmed why I couldn’t hear....
  16. Thread: Ear Wax

    by Pete
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    Ear Wax

    During the past few months, I’ve noticed that my right ear is producing a lot of wax (cerumen). I had my ears cleaned in June when I went for maintenance on my hearing aids. That helped for awhile,...
  17. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Gary L

    I don’t have the symptoms you describe. Hope yours subside soon.

    Where are you being treated? Several people on here goto Addenbrooke’s and see Dr Jayne there. They all seem to be doing...
  18. Thread: Telling my story

    by Pete
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    Re: Telling my story

    gunnyl

    Good to hear from you and that all is well!! Hope the good partnership continues and results in good health for you!!
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    Re: Recent diagnosis and new to site

    Hi Lisa,

    Glad you found us, but sad you needed to.

    I was situated similar to you at disease onset. Age 64, pretty fit, and no other health concerns. I’m over nine years in now, and have gotten...
  20. Thread: Covid-19

    by Pete
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    Re: Covid-19

    Interesting read...

    Steroid's COVID-19 benefits confirmed; spotlight on immune cells
    https://reut.rs/3hev7Eb
  21. Thread: Covid-19

    by Pete
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    Re: Covid-19

    Pred may be useful for treating COVID-19.

    Another steroid is thrown into the mix of potential COVID-19 treatments...
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    Re: Thankful to find this forum

    DStaelens

    Welcome to the “club”, Dave. Hope the rituximab proves to be an effective therapy for you. Reading through your symptoms, I thought that there are many folks on here who can relate. The...
  23. Thread: Retuxin infusion

    by Pete
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    Re: Retuxin infusion

    My rituximab infusions have all been non-events. I’m restless the night of the infusion and a little tired the next day, but that has never interfered with anything I wanted to do.
  24. Thread: Covid-19

    by Pete
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    Re: Covid-19

    Aneinu

    Here you go: https://www.wegeners-granulomatosis.com/forum/threads/6046-Coronavirus-and-GPA?p=116399#post116399
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    Re: Coronavirus and GPA

    richard052018

    The ER doc told me to follow up with my PCP. We discussed kidney findings. Scarring and thinning are wegs related and likely causing my elevated creatinine and depressed eGFR. Cysts...
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