:hug3: I'm in remission! However, will be on immunosuppressants for life, Oh! Joy!! Here's hoping no flares :scared:
Type: Posts; User: Reetsky
:hug3: I'm in remission! However, will be on immunosuppressants for life, Oh! Joy!! Here's hoping no flares :scared:
Nope. Definitely a woman and thank you for the compliment; gratefully received. I chose the angel 'cause this is how I would like to imagine him. A strong body to defend me and fight my corner. ...
Hi Linda,
it won't ever be the same again. There is now a huge hole where your heart used to be and it's the same with your other children. My story is the same as your sons (it's on the weggie...
Hi there. Don't know if you've read my 'Weggie story' but similar to yours except I wasn't diagnosed until I was admitted to hospital, put on life support, family called in as might not make it...
Hi There, I was initially prescribed 100mg of Cyclo and 40mg of Pred. I had a moon face with the Pred that slowly reduced as the lowered the dose over time. However, I was only on the Cyclo six...
Sorry Anne, yes the photograph in my info area is me but the Angel is a picture I found on the 'net'. Don't be afraid to ask me anything, will always answer where I can.
I also had whooping cough as a baby. The symptoms and synchronicity just keeps growing with us on this forum. The more questions I ask the more posters respond with similar tales.
I'm glad you like my Guardian Angel! He's quite dishy, isn't he? Bloods were good but now on another med for high blood pressure and protinuria!! And so it goes on.............
Yesterday is...
I'm appalled at the lack of real face to face support for WG (GPA) sufferers. Foundations, Societies and Groups exist that print glossy info booklets and pamphlets and make them available on the...
Your stories make me visualise a huge jigsaw where each piece is a different symptom and diagnosis. However, there is a huge hole in the jigsaw - right in the middle and it can't be completed until...
I'm puzzled. Most of us seem to have evolved this illness from the sinuses/ears. Surely research is being carried out to follow the trail from ENT to GPA? I've had two sinus ops, couple of burst...
Thanks Phil, will check the map too. It would be nice to sit down and talk to people experiencing this illness.
Most of us seem to start symptoms with Sinuses. It would be interesting to know how many of us had Tonsils/Adenoids removed previous to onset of WG and could this be a link n the chain of symptoms?
Hi Joyce, your story is very similar to mine. I have four grown up children (3 live close bye) but only one of them (who now lives with me) can cope with this illness. It's a strange one. Your...
Anyone know of face-to-face support group in Lanarkshire or surrounding area?
Hi Guys
medics have told me that stress is not a contributing factor to GPA (WG). I'm not so sure. What do you think?
:biggrin1:Thank you for taking the time to list these websites: you are a real Gem.
Hi Barbara, sorry to hear your unwell. Keep asking questions and you will get answers from fellow sufferers. This site is superb and the people on it are all like us, victims of this pernicious...
G'day! Had bloods taken today. Off to renal clinic on Thurs. will know then if WBC count (currently 236) and haemaglobin (currently 10) have improved and whether I remain off Moefitil (this is...
Hi Barbara, nice to meet you. You would think that by now clinicians would be more clued up on this illness. There are a few sites on the Internet where you can get information but in my case my...
Yesterday is history, Tomorrow is a mystery, Today is a gift. That's why it's called the present. - that Chinese fella Confu..........
I'm living in Hamilton, South Lanarkshire but my Son went to university in Dundee. Thanks everybody for quickest welcome and responses. It's good to feel supported.
My Consultant at hospital is very good. It's the potential flare diagnosed as 'mumps' that will concern me.
Hi M
Still with same docs at moment, only just recovered enough to think about changing. However, my meds are free so it costs GP practice a fortune. There is some justice there after all.
Hi Michelle
Nice to talk to you. Just put story on forum, it's a long one!! I'm from Scotland.
Happy Trails,
Reetsky.