Search:

My doctor sent me an email - said I should have the vaccine 4 months after my last Rituxan infusion. Last RX infusion was Dec. 18th. I will be getting the vaccine in April now instead of March. ...

Have had a few nose bleeds, 2 in the last 2 days. Does anyone else have issues with this? Wonder if it is the dry weather? Have had Wegs for approx. 14 years and haven't had issues with bleeding...

the last few years every time I am bit they look horrible and are huge - I have to wear bug spray whenever I go out. They will actually bite me on my face. Never had this problem before. At the...

I have had Wegener's for approx. 13 years. Have been on all meds to control with the best results on Rituxan and Pred. the Rituxan kept the CLL (Chronic Leukemia under control (have had for 3...

Since being on Rituxan I have not had to have my windpipe stretched (3 to 4 times I had to have it done). I do have mucus/coughing in the mornings - usually I am able to take care of it within an...

It has been a long 2 months - first started as a sinus infection late November. Took meds. Then I came down with the stomach bug Dec. 23rd. Really sick with it. After Christmas I came down with a...

My ENT has done the SGS procedure on me 3 times - in the hospital as an out-patient. I went from not being able to breath normal to no problems. Since I have been on Rituxan I have not any problems...

My specialist said no live vaccines. I am on 5mg predisone and Rituxan every 6 months (2). When I went to India for work I only got vaccines which did not have "LIVE" viruses. I did get shingles 2...

Just got back from the CLL doctor today - white count is up to 21,000. He did not seem to concerned. Will monitor me with some new blood tests (guess they can look at the cells and do some...

I have had Weg's for approx. 9 years now. Been on multiple medications. RTX off and on for 3 years. This year they diagnosed me with CLL (chronic leukemia). Now I have to deal with that. They...

Just joined the YMCA and will attend my first swimming class today. Walked and rode a bike on Wed. Tired of the weight gain over the past 9 years since I was diagnosed with WG. Will see how I do. ...

Breathing - can be scary. Just went to my ENT he said things look pretty good, some scaring still showing. I have a close relationship with him because of all my problems even hugged me on Friday. ...

Had to have my windpipe stretched 3 times - since being on rituxin it has taken care of the probelm. Still see my ENT but for 3 years now everything has been fine.

I had a Tetanus before going to India 2 years ago - no problem.

I have had Weg. for about 8-9 years now - was just diagnosed with CLL - they think I have had it for a long time. The Rituxan treats not only Weg. but CLL also. Besides feeling tired I really...

Just finished my Rituxan infusions (4) a couple of weeks ago. 3 days ago my feet and left knee became swollen. I am coming down off pred's. now on 10mg. Anyone else have this issue. I have been...

I had the flu - my throat (I HAVE THROAT PROBLEMS HAS TO BE STRECHTED) started closing up and I knew I was in trouble so went straight to the ER. Showed up in an x-ray that I had pneumonia in my...

After 2 weeks of my arm hurting it seems better, went to the Ortho doctor and he said it was tendonitus. Gave me pain pills and some kind of prescription cream to rub on it. I would like to say I...

No pain in joint and if I put pressure on it it feels better. It is about half way between my shoulder and my elbow and it hurts in one spot. No coughing or anything. Am on Pred (5mg), bactrim,...

for the last week I have had pain in my left arm 3" above my elbow - I helped my daughter move, I really did not do a lot, but the pain started the next day and it comes and goes. I have been pretty...

I wondered how many other Wegener patients grew up in a household that had smokers (my mother smoked while pregnant). Both of my parents did. Later on after I got married my mother-in-law did...

Came down with it last Friday night. Came to hospital Sat. morning about 4AM when my throat started swelling from the coughing. When I arrived my heart rate was 135. Admitted and now after 4 days...

Went to the Oncologist/Hemo before Christmas - took 8 viles of blood to run the test on my low platelet count. Went today and got results, everything is normal - liver, etc. so he wants to just...

Have doing great lately but after going to the doctor last week for my regular visit the labs showed that my platelet's were dropping. The nurse called and they are going to send me to a blood...

I had tubes put in when I was first diagnosed - approx 8-9 years ago. Have not had to have them replaced once they fell out. I do see my ENT every 3 months mainly due ot the throat issues I had but...