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Type: Posts; User: Wanda

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    More confused everyday

    First I was told I have Wegs, put on meds for several months, then told I do not have wegs, it's fibromyalgia, osteoarthritis and sinusitis. (Rheumy) Today I was told I do have "Vasculitis"...
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    Bob, I am not taking any prednisone. I dropped...

    Bob,
    I am not taking any prednisone. I dropped 5mg every 7 days and then 2mg for a week to zero. I also quit taking the immuran. Where I live there are no wegs specialists but my new primary care...
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    drz, thanks for the reply. I think at this point...

    drz, thanks for the reply. I think at this point I'm going to have to wait until I get sick again and start over. My Fibromyalgia is really flaring right now because of all this added stress. I will...
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    Anne, you are correct. My first rheumy did a c...

    Anne, you are correct. My first rheumy did a c ANCA test and it came back positive so he put me on Septra for 30 days then MTX and prednisone. He didn't do a PR3 work up or biopsy. New rheumy did...
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    Hey Bob, I was on MTX for about a month but it...

    Hey Bob, I was on MTX for about a month but it gave me severediarrhea and I was sick for 4//5 days, then he put me on Immuran but my new Rheumy says it's such a small dosage why bother. (25mg a day)...
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    Anyone have answers about blood work?

    My sinus biopsy came back negative and blood work came back MPO/PR3 came back within the normal range ( <1 ) and new Rheumy said I do not have Wegener's. This is good news! However, I still have many...
  7. Carrie, Don't stress on the lab work, and as...

    Carrie,

    Don't stress on the lab work, and as far as children go, I had my last one at 30. You have only been married a short time. Get to know each other and spend time together before you have...
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    This is the best web site I have found to explain...

    This is the best web site I have found to explain what tests need to be done and what they mean.

    Wegener's-Tests
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    I just looked up what "reflex panel" was and it...

    I just looked up what "reflex panel" was and it says: The reflex automatically runs additional specific antibody tests included in the panel if the ANA is positive.
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    I had a lot of blood work done on the 15th and...

    I had a lot of blood work done on the 15th and results are not back yet. I called the lab today because I thought it's been a long time and was told everything is done except the ANA that they had to...
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    I was also on methotrexate once a week but was...

    I was also on methotrexate once a week but was sick for 4 days afterwards so he put me on Imuran which I am still taking
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    Symptoms were sinus infections, raspy voice,...

    Symptoms were sinus infections, raspy voice, joint pain, double vision,cataracts, eye infections and inflamation, sores in mouth, shortness of breath, tired all the time. I have COPD which is under...
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    Had my sinus biopsy

    The ENT said my sinuses looked good and really didn't want to do a biopsy. I don't have any nodules. I told him I wanted it done anyways. Do I need to have nodules in my sinuses in order to have...
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    Sticky: Wegener's-Tests...

    Wegener's-Tests

    I found this to be very informative about what test should be run.
  15. Thread: Biopsy question

    by Wanda
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    Biopsy question

    I am going to the ENT tomorrow for a sinus biopsy. I have stopped the prednisone and tomorrow will be the 5th day off it. I have had headaches and every joint and muscle in my body hurts but for...
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    Thank you all for your support and encouraging...

    Thank you all for your support and encouraging words. I have felt so lost and overwhelmed with information from the internet. Having moved and no insurance I had only been seeing my Rheumy once a...
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    Dale, I had CT done of the chest in August and it...

    Dale, I had CT done of the chest in August and it shows nodules but no one seems to be concerned. I was not happy with the Dr I had but was trying to stick with him because he seemed to be on the...
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    I had a biopsy of the lung and lobectomy in 1999....

    I had a biopsy of the lung and lobectomy in 1999. I think the biopsy was worse than the surgery, they kept me awake for it and I wanted to really inflict some pain on that Dr! I have read on here...
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    Dazed and confused new member

    I have been reading on here for quite some time now and everyone seems so caring and kind. I don't know where to start. I had lung cancer 13 years ago and have COPD and was seeing a Rheumy for...
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