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Type: Posts; User: Alysia

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    Re: Covid vaccins and WG

    This one is more promising then any vaccin and they have started the trial in UK:

    https://www.bbc.com/news/health-55022288

    Quote:

    A possible alternative to a vaccine, for people without...
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    Re: Covid vaccins and WG

    I have found 2 articles in the facebook vasculitis UK group.

    The first - things are complicated...
    ...
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    Re: Covid vaccins and WG

    me2 and NatriceRomeo - sending you prayers for an easy and perfect recovery. Can you, please, share what are your symptoms ? WG and covid might be too similar. With every morning coughing I would ask...
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    Re: Infections from mosquito bites

    So it must be the smile :biggrin1:
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    Covid vaccins and WG

    Hi, how are you doing out there ?

    I suggest we will collect here all the questions and medical info we can find on this subject, like professional articles or if someone has the chance to discuss...
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    Re: Infections from mosquito bites

    Now that I think about it, I was also not beaten by mosquitos for many years now. Maybe it's the pred :flapper:
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    Re: Ear, Nose and Eye involvement.

    Welcome to the forum. How can we call you ?

    In my humble opinion, your WG is too active for mtx or Imuran, and needs a more powerful med like rituximab.

    Can you consult a WG specialist ?
    ...
  8. Re: G'day Mate.. From Australia,Land down under

    Welcome Dutchie and congratulations for your triplets :hug3:

    Like Pete wrote above, I do have a saddle nose because of WG but I am not going to fix it soon or probably ever. One needs to be in...
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    Re: pberggren memorial thread

    Today, 6 years ago, my beautiful Phil flied high with his Batman wings, to spend eternity with Our Lord.


    I wrote to him:


    Sweetie,


    I can't believe it has been 6 years since you went...
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    Re: pberggren memorial thread

    Thank you, Michelle and Anne, from the bottom of my heart, for your beautiful and comforting words, and for being here all the way. I love you.
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    Re: Coping with stress on current pandemic

    Please read this one:

    https://abcnews.go.com/Health/cdc-death-report-fauci/story?id=72759172

    Dr. Fauci was the one who established the treatment protocol of ctx plus pred for weggies more then...
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    Re: Coping with stress on current pandemic

    Behaving like there is no covid - doesn't mean that it is not there. Worse - it only causes more spread of it due to not caring.

    Israel is in a huge problem now because of this kind of attitude:...
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    Re: pberggren memorial thread

    Thank you, Natty. You are very kind. I hope that you are doing well. God bless you.
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    Re: pberggren memorial thread

    Phil's father passed away couple of days ago. He was very sick in the last 3 years or so and suffered a lot.

    I was in contact with him and with Phil's mom couple of times a week on line and will...
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    Re: Wegener's and surgery

    As far as I know we need to increase the pred and take extra antibiotics.
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    Re: Happy Birthdays Thread

    Happy Birthday marta :wub:

    I hope that you are doing well and that you birthday was (yesterday ?) As awesome as you are :hug3::hug3:
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    Re: Happy Birthdays Thread

    Hi gilders :hug3: I hope you still had a joyful birthday in spite of the restrictions.

    Do I remember correctly that you got your new kidney around your birthday ?

    Can your wife switch to...
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    Re: Happy Birthdays Thread

    Happy Birthday @Pete and gilders from @pberggren1 and from me. May you have an awesome day.

    Not sure how bad is the covid at your area and how you can celebrate your day but I hope it will be...
  19. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Welcome to the forum, Gary. I think you must get second opinion from the best experts possible.

    I live in Israel but my WG dr. Consults with prof. Jayne in Addenbrook. I tag @Geoff and...
  20. Thread: Happy Birthday

    by Alysia
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    Re: Happy Birthday

    Yes, Anne, chocolate works well for me :biggrin1: cheers :hug3:

    (Thanks for your kind words... :blushing: )
  21. Thread: Happy Birthday

    by Alysia
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    Re: Happy Birthday

    I came to the forum to wish Anne a Happy Birthday on the birthdays' thread, but will use this thread now. Thanks Masha.

    Happy Birthday, dear Anne. I love you and I feel blessed to call you my...
  22. Thread: Site statistics

    by Alysia
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    Re: Site statistics

    Haha yes! By a significant number.
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    Re: Recently diagnosed with GPA

    Welcome to the family, Mandy.

    6-8 weeks since the rtx might not be enough to get its full treatment effectivity. You might feel better after 3 months, even your hearing might get better. Also,...
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    Re: Coping with stress on current pandemic

    What helps me to endure ? Only my Faith.

    I pray every morning and during the day when things are too much to bear. I also watch daily livestream Mass and also reflections on the readings which...
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    Re: Coping with stress on current pandemic

    In the last few days as the pandemic is growing in crazy numbers and the **** gov. does nothing, my WG has reacted to the stress. Eventhough I should now be "covered" by rtx and 10mg arava, while...
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