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  1. 'Tis disease has done nothing positive for me by...

    'Tis disease has done nothing positive for me by any stretch of the imagination. When someone asks me what age I would return to if I could it would be 25 because that was around the time I was...
  2. They say nothing lasts forever but I have learn...

    They say nothing lasts forever but I have learn in the year or so that wegeners is forever.
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    As much as I appreciate the likes on this one him...

    As much as I appreciate the likes on this one him cutting for chunks out of my ulcer was not pleasant! :smile1:
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    He biopsied it today. Took out four pieces. We...

    He biopsied it today. Took out four pieces. We shall see. Much like biopsies for wg ones for pyoderma are often inconclusive.
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    I now have three doctors on it. One useless one....

    I now have three doctors on it. One useless one. One amazing one and then my wegs Doctor will see me in May. I have the option of seeing him sooner if needed.
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    Some very fun news...it has gotten much worse...

    Some very fun news...it has gotten much worse since this picture. One idiot Doctor is somewhat to blame. Also these ulcers sometimes just get worse rather than better. I now have a wound care doctor...
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    2220It hurts

    2220It hurts
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    My my husbands boss has one. They spent the...

    My my husbands boss has one. They spent the first month treating it as a brown recluse spider bite! Miss diagnosis at its worst. You need to be gental with a pyoderma and keep it moist to heal it....
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    And it is on my right shin.

    And it is on my right shin.
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    I got some antibiotics today as they believe it...

    I got some antibiotics today as they believe it is infected. I have had it for over a year now. It was getting better but they change treatments as it progresses and unfortunately, some treatments...
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    I went to family doctor today as the nurses that...

    I went to family doctor today as the nurses that dress it feel it's infected. The prednisone is for the pyoderma but he gave me too much. I don't know how to explain the pain.
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    Took some prednisone today...

    Yup. Had a ton left over from last time it was prescribed as he admittedly can't count. It is not old or expired. I have what is called a pyoderma gangerosum and it is the most excruciating pain...
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    just wondering how your treatment for pyoderma is...

    just wondering how your treatment for pyoderma is going. I have been suffering with this for more than a year now. It is so painful. Seems to not heal
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    At my work everyone knows not to hug me but...

    At my work everyone knows not to hug me but honestly I just keep wanting to knock on his door and do it again. He is a piece of me now. A very important piece of me.
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    So I just came home from driving my daughter to...

    So I just came home from driving my daughter to work to tell my husband that I rearended somebody. Yup damaged my bumper. Best day ever, and I am being one hundred percent serious. As I was...
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    Loosing my mind, feeling guilty

    Hi

    its been two weeks tomorow since my neighbour went into cardiac arrest in his driveway and I did cpr resulting in him living instead of dying. It took a bit longer but he is now home.

    He...
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    I am no longer having bad dreams. It happened on...

    I am no longer having bad dreams. It happened on Sunday and we heard nothing until last night I got one of my employees who's dad works with him to find out what he knew. He is the one who told me...
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    there is a ton of stuff they DONT teach you in a...

    there is a ton of stuff they DONT teach you in a first aid course.

    1. if you ever use it it will probably be on someone you know or love. This completely negates the belief that most of us have...
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    Thanks. I am but I am also overwhelmed.

    Thanks. I am but I am also overwhelmed.
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    Saved my neighbours life this weekend

    He had a heart attack in his driveway and I had to do cpr on him. Just found out this evening that he is alive and will be home this weekend. :biggrin1:
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    I have aves never felt the need to raise...

    I have aves never felt the need to raise awareness. This sounds selfish I am sure but I don't think i would be any kind of embassador for wegeners as I think to be "raise awareness " type person you...
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    It it did the opposite for me. I think to myself...

    It it did the opposite for me. I think to myself while people speak of what is wrong with them "we all have our problems...I don't need to hear about your sore back etc.".
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    Ontario. I am well. I am having a minor weg...

    Ontario. I am well. I am having a minor weg flare being treated by a little prednisone-al is turning over in his grave at my statement and phil is defending me to him. It is just a skin flare I...
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    Hi Anne! How have you been?

    Hi Anne! How have you been?
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    I tell nobody anything they don't have to know. ...

    I tell nobody anything they don't have to know. I rarely say wegeners granulomatosis. When I am visable flaring I say "oh it's an autoimmune condition that you will never hear of and its no big...
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