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Type: Posts; User: Hannah

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    Changing irrigation tools?

    My Wegener's is limited to my nose and vocal cords, with some redness appearing in my eye during a flare. My nose collapsed last year and I have no septum any more. I have been irrigating with a...
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    I just saw the ENT for this today. I have a lot...

    I just saw the ENT for this today. I have a lot of post nasal drip and use Neil Med and Wilson's solution, but was having swelling in my throat that caused voice issues. I did a round of prednisone,...
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    Glad you're home. I had a kidney biopsy and liver...

    Glad you're home. I had a kidney biopsy and liver biopsy last year. For me, the tests have been worse than the disease! Good luck.
  4. I was on methotrexate for a few years while...

    I was on methotrexate for a few years while teaching. Now I am on Plaquenil and still teach. I try to wash my hands and use hand sanitizer frequently. At the first hint of a cold, I drink tons of...
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    I have (had?) Graves Disease. I was diagnosed...

    I have (had?) Graves Disease. I was diagnosed with it way before my Wegener's. I had the radioactive iodine treatment and have taken medication for it since. I've never had a doctor point out...
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    Thanks for all your input! I saw the doctor this...

    Thanks for all your input! I saw the doctor this morning, and several medications were talked about. What we ultimately decided on was one I hadn't heard of--hydroxychoroquine, or Plaquenil. It's a...
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    I'm bumping this up to update and ask more...

    I'm bumping this up to update and ask more questions.

    My liver was fine, and the GI doc approved me going back on Mtx. A few weeks of phone tag with my rheumatologist about labs and 2 Mtx...
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    I had my biopsy yesterday. I got out of the...

    I had my biopsy yesterday. I got out of the hospital around 4:30, and went back because I was vomiting. Luckily, I didn't have to stay overnight. I had planned to go back to work today, but put in...
  9. Thread: kidneys

    by Hannah
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    I had a kidney biopsy earlier this year. It was...

    I had a kidney biopsy earlier this year. It was scary before going in, but it's a fairly quick procedure. The recovery involved laying on my back for 8 hours and staying overnight for observation....
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    Thanks for the responses. Morningsunshine, my...

    Thanks for the responses. Morningsunshine, my ophthalmologist and I have really just shrugged at each other, mostly. He's seen my eye when the steroids were taking care of the inflammation and more...
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    Hello from Kentucky!

    Hi,
    My name is Hannah, and I'm 26 (until Saturday!). I live in western Kentucky. I've been lurking awhile. This forum has helped me count my blessings. I was diagnosed with Wegener's back in March,...
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    Methotrexate and liver damage

    Hi,
    This is my first post--I'll have to go back and do my introduction post! I was diagnosed with WG back in March, but had vasculitis issues in the past. I was on Methotrexate for the second time...
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