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I gave up. I added 1 mg(total 3 mg). I'll have to go slower. I was moving at a good pace. It was too good to be true.
stikker

Exactly! They are near joints but not in the joint. I also forgot to mention I am determined to get off pred. I am down to 2 and it will take more than these bumps to make me go back up!

I get these weird swellings on the back of my hand and now a new one below my elbow. They are always associated with pain. Wegener's dr says that it is not related to the disaese. ? Possibly related...

I don't think my husband understood how bad this was until he went to the Doctors with me. My wegeners nurse is very empathetic.(i think thats the word i'm looking for) She stresses that I'm...

My symptoms were muscle pains and mild(symtomless}kidney problems. The pain and exhaustion were the only symptom I had. When I relapsed I got pains back, increased heaing loss (hard to monitor for...

Daggar, if that was addressed to me, I went back to my previous dose 7.5 mg and stayed there a long time, until I flared and went back up to 40.

I don't know how to tell the difference between weg pain and pred pain. To me it feels the same. Muscle pain. Like I said I just reacted and said I'm not going there, soI upped my dose and stayed...

I have no answers for you. I also look forward to the replies. I go from 12.5 to 10 today. After that I don't know how slow to go either.
I got to 7.5 once in the 2 years I've been sick. 5mg...

I just wrote this long rant about how miserable I am and decided that it was too negative to post. I am very depressed. I will be seeing my primary care dr tommorrow. I hope she has a magic pill. ...

I flared at Christmas and I went from 7.5 up to 40. I had to take a week off work. I was not fit to be around anyone. I wasted 5 days of vacation time to do nothing but try and stay calm. I could...

Wow! Celexa is an anti Prednisone mood swing drug??? I have to get me some of that!

Sorry. I was not clear.
I am a part of this study through Boston Medical Center. In addition to the other facilities that participate in the study, U of Pitts. is now a part of it and can...

The Vasculitis Clinical Research Consortium is pleased to let you know the University of Pittsburgh is now enrolling patients for our study:
Study Name: 5505 - VCRC Longitudinal Protocol for...

I feel like I'm always posting links. If you want me to stop just say so.
I joined a Wegener's group on facebook. They sent this to me today.

ChemoCentryx - News - Press Releases

I was going to say the same thing. I'm not willing to experiment on myself. It can always get worse!

I saw Dr Merkel today and I asked him about it. He just laughed at me and said we don't prescribe it.

I work in a Molecular doing DNA testing for cancer. I can't work from home. I HAVE TO WORK. There is no choice there. I'm between a rock and a hard place. I need insurance so I work and expose...

I agree. I wouldn't get upset until you speak to the Dr. The nurse probably doesn't know what she's talking about.

I'm not sure there is hope. It makes me glad I don't have kids.
We have destroyed ths planet. We should start looking for a new one soon. Maybe we can leave the planet killers here?

Medical News: Pesticides Linked to RA, Lupus Risk - in Rheumatology, Arthritis from MedPage Today

This s not the first article I have read about chmcal exposures. I am exposed to chemcals at...

My hot flashes are much much worse on Prednisone. Just a warning. They're almost unbareable.

Finally!! A pred side effect I don't have. I probably just jinxed myself. I'll be breaking out by morning.

Intersting web site. Sponored by genentech(roche) the makers of retuxin. Had illustrations of what they think is going on. Basic but good.

AAV Info || || Home

I sounds like that would be another "battle". I am fighting enough right now. (the disease, getting the care I need, etc) I don't have enough energy for any more.
Just a thought. Would other...

I agree that no one cares about your health more than you. You have to fight for your care. It would be very easy to fall through the cracks. You have to demand an appointment when you need it. If...