Search:

The good news is over the day today, my sinuses got a little better. And by the time I saw the Dr I was doing alright all things considered. He said if it was an infection my blood results from Mon...

Thanks for the quick reply, pberg. I'm not on prednisone now. Just Bactrim and Imuran.

I do rinse my nose out 2 (sometimes 3) times a day with Neil Med's isotonic saline, but in the last couple...

Well, things got worse. On (last) Friday the all too familiar joint pain started in both ankles and a lesser extent the knees, mostly in the 1st hour awake in the morning (though I have been taking...

Bump Does anyone know?

I have a mild case of WG. What happens if you get a flair up, in terms of what meds do they put you on if you went from Cytoxins (200mg) to Imuran for 6 months and got a flair up? Do you go back on...

I didn't feel any lumps but still want to get it checked out bc it is riding up too high (always the right one, right?). But a urologist? To me that sounds strange since it isn't a urethra type...

Does it affect Caucasians more than other races?

I need to see a urologist, I was told, bc I wanted to check for testicular cancer (bumps?) as well as to see why one is hanging an inch or 2 too high and is concerning bc it won't move further away...

Hey Michael, welcome. How long do you think you will have to wait on the cytoxins? My Dr wanted me on it right away. I actually started them one day before being diagnosed (we all knew I had WG) and...

Yikes. Hope you keep getting better man! And it's great you're off dialysis!

Is that Damian in your avatar? South park is great, that episode was from a while back too.

That's what I've heard mostly (Europe and Canada systems), that people like it. But I also hear stories of it taking months to get CT or MRI scans, or something like that. I just wondered with...

Thank you. Thanks for reading my story. It was rough, the dependence, but the urges weren't as bad as the other times I quit it. I think I was over it. I used the nicotine patches (and later gum)...

Water based lubricant, known publicly mostly for sexual use. Just tell the cashier it's for your nose. jk! This Wikipedia link says it better: K-Y Jelly - Wikipedia, the free encyclopedia
-"K-Y...

I use naturally-derived calcium -the one you should take with food and of lower quality. I may look into the Chelated calcium (calcium citrate) ones though, depending on price and so on. What do you...

Heh, I meant that after my ENT told me about neilmed, I haven't been back. ;-) But that's in large part bc I know that he knows nothing of WG. I thought about going back but haven't needed it. That...

Agreed. Be careful or do some research. I'd ask your dr if I were you, if those sanitizers are a good idea or not.

Is that a fact, you can use ky jelly in the nose? I didn't know they made a spray, but either is an interesting concept. I'd at least like to know more and I haven't even used ointment in several...

OMG! Sorry about your eye. That is rough, no side stepping around that. It's good you can still see. I had some eye stuff but petty in comparison. I think just slightly- stratched and irritated...

That all sounds pretty good or normal. I think you're lucky like me in finding it early! Now you can tell people like me that, "I'm one of the luckiest, unluckiest bastards around." :) But that is...

Thank you.

No, money with me is still very tight. And when I ingest, it seems so much must be wasted (it's not how I'm cooking, I have that down) in efficiency compared to inhaled (i.e., it may...

I took your calcium comment to heart and took a 500mg pill for the 1st time in months. I do worry about kidney stones though. As for milk, OJ, ect, it is 200-500mg Ca++ per one of my sevings so I get...

I'm sorry. Do you really believe he thinks that you're making it up or lying to use it as an excuse? With so little info about him, and knowing how LITTLE the public (including doctors) know about...

Was a pleasure. It just says DS (double strength). I do them Mon, Wed, and Fri. And 150mg imuran everyday.

NicShaf - Thank you. Very kind of you. Let me know if you have any questions. Are you getting the cramps (real bad with the jaw, calves, ect) or headaches? How much prednisone are you on and are you...

True, defend wasn't the best word. But I do tend to defend pot use a lot elsewhere, so that's more of what I meant. I'm not used to talking with others that have WG... I didn't mean to look on the...