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Type: Posts; User: John S

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    Re: Coronavirus and GPA

    https://youtu.be/e0-2XxgHIXkDrZ,
    please add “Stay the [email protected]!# at home” to your list
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    Re: Coronavirus and GPA

    Today marks 21 days of "shelter in place" for us. We have completed 4 jigsaw puzzles, watched the entire Marvelous Mrs. Maisel series and eaten all of our Twix bars.
    Don't get me wrong, I am...
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    Re: Coronavirus and GPA

    We learned that Walgreens allows shopping their store through the drive up window. The “convenience store” items there are pricier in many instances but it is nice. We told the girl in the window...
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    Re: Coronavirus and GPA

    I am skipping my labs this month. I had a Rituxin treatment on March 13th so I have been home bound since the 14th.
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    Re: Coronavirus and GPA

    I was scheduled to get a Pentamadine treatment this Thursday. I emailed one of my local rheumatologists and she will prescribe an antibiotic that I can take at home.
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    Re: Coronavirus and GPA

    When I was initially put on Retuxin, Dr. Villa Forte prescribed a liquid antibiotic that was yellow and had a disgusting taste. (I am allergic to sulfa.) Out of mercy, she changed the prescription to...
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    Re: Coronavirus and GPA

    My step-daughter is a nurse at an urgent care facility. They don’t have masks etc so she is at risk of contracting the virus. She has two young sons that my wife usually cares for 2-3 days a week....
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    Re: Coronavirus and GPA

    I had a Rituxin treatment yesterday. Dr. Villa Forte reminded me that I’ll be very susceptible for the next three weeks. My wife and I will be self-isolating. Lots of books, Netflix, YouTube guitar...
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    Re: Confirmed Diagnosis

    I’m approaching my 3rd anniversary since diagnosis. My next rtx infusion is next Thursday. Daily mild headaches started coming back in January. Blood pressure has increased dramatically and For the...
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    Coronavirus and GPA

    With GPA we are susceptible to diseases like the Covid 19 Coronavirus. What special precautions against this are reasonable? As a retired person, I don’t need to interact with a workplace environment...
  11. Re: prescription process- the path from the Dr to the Pharmacy

    Patti, in Dr. VillaForte’s office has been wonderful in making sure that everything runs smoothly for me. I get the Rituximab infusion every 6 months. She sets up my appointment three months in...
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    Re: What is the smallest dose of Rituxan?

    I am allergic to Sulfa so I can't take Bactrim. I do get a monthly breathing treatment of Pentamidine in it's stead. I have not had any infections.
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    Re: What is the smallest dose of Rituxan?

    What antibiotic are you taking with the Rtx?
  14. Re: shankxonline - My path to identify GPA and overcome it

    what is your sed rate?
  15. Thread: Strict Dieting

    by John S
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    Re: Strict Dieting

    Over the last few months, my old eating habits came back. One day I realized that I had packed 15 pounds back on. I've been on my strict habits again for 4 days and am determined to lose the 15 plus...
  16. Thread: Liver Spots

    by John S
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    Liver Spots

    I have recently developed two small "liver spots" on my left arm. I don't think it is of immediate concern but I sent an email to my Doctor about it. They might just be because I'm old.
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    Re: hearing loss/baha

    My wife is convinced that I need a hearing aid. Every time I say something to her she asks "What?"
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    Re: Trying to learn all of this

    It took her a couple of weeks to make the diagnosis. She thoroughly went through my text results, scans and records before making the correct conclusion. She also came up with a wonderful treatment...
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    Re: Trying to learn all of this

    She is the absolute best! I initially went to her because I had mixed test results like yours. Some thought I had Lyme disease, some thought GPA, others were just treating symptoms. Dr Villa Forte is...
  20. Re: shankxonline - My path to identify GPA and overcome it

    my eyes have been fine since I went on retuxin
  21. Re: shankxonline - My path to identify GPA and overcome it

    Early in this disease, before it was diagnosed properly, I was having double vision. At one point , my right eye swoll up. The doctors were then treating my symptoms. Lots of Prednisone brought my...
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    Re: Got a cold, should we go to doctor?

    So, has the condition passed or gotten better. Inquiring minds are nosey as Hell.
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    Re: 1000mg or 2000mg rtx ?

    I got a 1000mg infusion today. Dr VillaForte told me that in six months, she might reduce it further to 500mg. I had a 1000 infusion six months ago and prior to that, I was getting twin infusions...
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    Re: 1000mg or 2000mg rtx ?

    I'm heading to Cleveland. I'll see Dr VillaForte and get some RTX tomorrow. Now I'm full of fear that it may lose it's effectiveness. I am enjoying life immensely since I started on it. It's a whole...
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    Re: new member with question regarding remission

    Atmy sickest, my SED rate was 107. In remission, it is consistently 8. Nasal crusts are rare. Headaches are sporadic but not as devastating. Rituxin baby!
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