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Hi all, need some feedback from anyone who is or has been on this drug.
As my ANCA was going up on Imuran, my doc has put me on Mycophenolate mofetil, or Cellcept, as it is usually called.
I'm on...

Found a great walk last week,went right down a big hill & found 132 steps (I counted them while puffing & panting) that took me up to the top of the hill.

Had to stop a couple of times because my...

Hello windchime, about hair loss !!! I was so worried but it was only thinning, It was ok & my hair is back to normal so don't worry it's not permanent.

Hi Pete, So glad you posted this. My husband complains to all my doctors because he thinks I'm walking too much, & guess what they all say !!! It's so good for you keep it going.
My body is so...

Hi Woz, I only see one doctor at Concord ,every 3mths now,unless something goes wrong with me & then I ring the immunology dept. & they will contact me. Yes they do have Wegs specialists at Concord &...

Hi Woz, the doctors say I'm now in clinical remission, anca down to 0.5. right now I'm on 5mg of pred, have been on that now for a bit over 6mths. Will be seeing my wegs dr next week so i may be able...

Hi Woz, let me know what your doctor says.

Yep my skin will burn even if i'm in the sun for a short while. Am on Aza too & it seems to agree with me . Question to all please , I read the information sheet & it stated to take it on an empty...

Hi Woz, just read your post & being from Sydney too I was wondering if you were talking about Concord hospital. They have been treating me now for 2years & the doctors & nurses are just wonderful to...

I'm fully aware that wegs is a disease of the immune system, before my dad was dx he was in hospital & the docs said that he probably had TB. It was later discovered that it was wegs with lung...

Just bad luck I guess. My osteoporosis was caught early & I've been on Actonel for 7 years now. No broken bones & no pain. The osteoporosis is in foot (broke my big toe water skiing years ago) ,my...

I hope & pray that no one in my family will get this horrible disease.Thank God they will
know what this horrid wegs can do so if they catch it early it will help.

Sad but true, I only hope &...

My father had Wegs, & the doctors told us then (25 years ago) that it was not inherited. Well now they say it can be but it is very rare .looking back on our family tree we found out that that...

What mg. of pred are you on? I lost weight on pred.only because I couldn't unwind or sleep. This was on the high dose & now I'm on a low one I have regained the weight I lost.

I think your body tells you when it's doctor time. Since I got Wegs I have seen so many doctors & I'm so over it.
I will be a bit worried if & when I have to go off pred, because my joint pains may...

It usually wakes me from sleep, at night only & I'm only on 5mg pred. I sleep with a fan near me & usually every night it will go on.

I had to go to hospital for 6days, got a bad dose of vomiting & gastro which got worse every day. I had to go off the Imuran so the diarrhoea would stop & all my bloods & white blood count went down....

Great that's all I need , another autoimmune disease to go with everything else. Usually I'm ok with what's going on with my body, I don't like it but I can exept it.
But every now & again I have...

Hello to all,
I need some advice, all my bloods have been normal & my ANCA is going down every month but I'm having a bit of trouble with my hands & feet.
Every now & again one finger will feel...

Lightwarrior, she is a pug/jack russell cross, called a "puggle". She was a birthday present a few years ago, all the rest of my dogs have been rescue ones. We still have Lucy(the puggle ) but it is...

Thanks for that Sangye, I won't stress too much now about my ANCA , so far all my other tests have been normal. Hope it stays that way.

Well while i was in "cyberspace" i finished my cyclo. chemo & am now on 100mg Imuran & down to 7.5mg of pred. Am feeling ok thanks, ANCA levels are at 17( doc. said 5 was average)
I'm not sure if...

Thanks for that ,I will ask my dr.about folic acid.

Hi Pete,
I have been seeing a wegs. specialist for 1year now. I must say I'm feeling very well apart from the things i mentioned , Am having regular bloods done all is normal except my ANCA levels...

I need some advice about Imuran, I'm on 100mg. daily, about 1month now & loosing my hair. I went through 6months of cyclophosphamide chemo without any hair loss.
also have been getting night sweats...