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Type: Posts; User: drz

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    Re: Coronavirus and GPA

    They have survey on what is important to us in their research trials for a vaccine.

    https://delphimanager.liv.ac.uk/aavresponse/Delphi



    New Research Project Open:
    AAV Response Criteria...
  2. Re: My third anniversary of my Weg diagnosis is today.

    This is the thread I started 7 years ago and kept up for many years but then started posting mainly in the Celebrate How Far we Come thread. It has some info not contained in other thread so it might...
  3. Thread: Dexamethasone

    by drz
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    Re: Dexamethasone

    My GPA doctor said they would use this drug (Dexamethasone) for treatment if I got Covid-19.

    He also doubled one of my GERD meds (famotidine) since a recent study suggested it might help prevent...
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    Re: Celebrate how far we have come!

    It has been 10 years since I joined the forum. At that time I was recovering in a nursing home after spending a few months earlier in a couple of hospitals.

    I reread all of the posts in this...
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    Re: Welcome new members!!

    A hint for new members is to remember many questions have been asked before and a search will reveal several answers or comments on the issue. This is often the quickest way to get helpful...
  6. Thread: Lung Flare

    by drz
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    Re: Lung Flare

    If the Wagner's attacks your lungs then coughing up blood can occur. It can make breathing very difficult too. There are other medical issues that can cause you to cough up blood which your doctors...
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    Re: Coronavirus and GPA

    How many did their survey on vasculitis and coronavirus and joined for support? It does seem strange to me that now when I am hunkering down for self protection and need more electronic...
  8. Thread: Haircut

    by drz
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    Re: Haircut

    There is a great video about getting a haircut while maintaining a six foot distance I found hilarious. It was in a foreign language but no words were needed to enjoy it. i can't find a link for it...
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    Re: COVID 19 and Vasculitis Webinar

    How many watched the webinar? Lot of info presented but consensus seemed to be we don't know enough yet about most of the issues. Use common sense to stay safe and stay sane.
    I Liked Spechs...
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    Re: COVID 19 and Vaculitis

    I just signed up for webinar on
    What We Know and Don't Know: Vasculitis and COVID-19
    Description Join our vasculitis experts in a discussion about vasculitis, COVID-19 and the...
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    Re: COVID 19 and vasculitis study

    https://www.vasculitisfoundation.org/coronavirus-covid-19/vasculitiscovid19/
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    Correct name for virus differs from illness it causes

    Officially named SARS-CoV-2, the novel coronavirus first identified by scientists in December 2019 has a different name than the illness it causes, which is known as COVID-19.
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    Re: Coronavirus and GPA

    I read a recent study about the effectiveness of various types of heme made masks. Most scored very poorly for protecting the wearer but any would help reduce the spread by protecting others. The ...
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    Re: Coronavirus and GPA

    Call in and discuss your concerns and they will most likely help you figure you the best way to help you get the service you need safely. Locally they have set up special hours and services, a drive...
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    Re: Coronavirus and GPA

    We are transitioning here in Minnesota. Our governor opened up some outdoor recreation like golf courses and parks but most things are still closed down. Our governor just announced a plan that two...
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    Re: New to forum, not new to GPA

    it is impressive a bit amazing that you had such a long run between initial problems and recent ones. You mention some kidney symptoms. Do you have any of the typical damage from GPA? Any current...
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    Re: Coronavirus and GPA

    Like many others here I have same issues. So far there are no virus cases in our local hospital and only couple confirmed in our area. So my local doctor thought the risk of coming in for my monthly...
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    Info on flu this past week

    USA - Key updates for Week 13, ending March 28, 2020
    Nationally, the percent of laboratory specimens testing positive for influenza at clinical laboratories continued to decrease and is now low. ...
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    Re: Coronavirus and GPA

    I read that Taiwan did well in handling the pandemic because they were excluded from WHO and didn't get their false info down playing the seriousness of the Covid-19.
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    Re: Coronavirus and GPA

    I just read that both countries are experiencing a rebound in number of cases from people returning or visiting their countries again. Still low numbers but a disturbing trend since there are big...
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    Info about the virus I found interesting and helpful

    The following is forwarded from Irene Ken a physician whose daughter is an Asst. Prof of infectious diseases at John Hopkins University.

    Informative medical science facts...
    In our community...
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    Re: COVID 19 and Wegener's - musings

    Is this drug ever used in treatment of GPA? tocilizumab

    massive steroids are usually used but are there any other similarities in how Covid 19 and GPA flares are usually treated?
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    Re: Coronavirus and GPA

    How do they get the items from the store into your car cause the drive thru windows are rather small? Does some one bring them out and give them to you?
    I learned our Walgreens says they will only...
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    Re: Coronavirus and GPA

    I went in two days early for my Pentamadine treatment for same reason. We had no confirmed cases in town yet or suspected cases being treated in the hospital so this was as safe a time as it is...
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    Re: Coronavirus and GPA

    I read that younger and older people are most blase about physical distance for safety. For me the memories of fighting for air when I was drowning in my own blood ten years ago for weeks in ICU is...
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