Search:

Type: Posts; User: Peter Marsham

Page 1 of 2 1 2

Search: Search took 0.00 seconds; generated 47 minute(s) ago.

  1. Re: Rituximab Might Be Only Immunosuppressive Raising Mortality Risk in COVID-19

    Just saw my rheumy yesterday, he recommended a fourth shot (second booster). Had my third in November, so have to wait a few weeks. No idea what my antibody count is, tbh.
  2. Replies
    104
    Views
    46,579

    Re: Covid vaccins and WG

    Hello all,

    after two shots of AZ in March and July, I asked my rheumy about a booster shot, and he heartily agreed that it was for the best - with one stipulation. I’m on 2000mg Mycophenolate...
  3. Replies
    44
    Views
    11,389

    Re: Third Vaccine

    Had my second AZ dose start of July, looking at RTX November or December (still up in the air due to lockdowns and work). Had no effects apart from a sore arm. I’ve been acting as if I didn’t have a...
  4. Re: Ongoing GPA symptoms with negative labs

    My first symptoms were a massive skin rash and focused chronic joint pain (left side, shoulder, elbow, hip, knee), two years ago. Recently I’ve had acute recurring left hip and lower back pain, had...
  5. Replies
    3
    Views
    2,285

    Re: Diagnosed August 2020 - New to WG

    It’s scary, isn’t it? But don’t worry, you’ll get to know what’s happening in record time. Did your doc put you on steroids or immunosuppressant therapy? They started me on mycophenolate a month...
  6. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    Good to at least see you starting to get back out. As far as the masks and vaccines are concerned, I’m with you %100. I’ve had both shots of AZ, didn’t have any sort of physical reaction, so I’m...
  7. Replies
    2
    Views
    2,068

    Re: Rituxan side effects two weeks later

    There’s a few different possibilities going here. I heard another forum member mention they felt queasy once after Rituxan. Personally I’m on maintenance doses as well, also 1x6 months, and haven’t...
  8. Re: Managing symptoms and treatment for a flare

    I have no idea if this may be related, but I was wondering if the itching occurs in the same spot each time? I’ve been experiencing recurring itchy spots on my neck for several months, sometimes I’ll...
  9. Replies
    15
    Views
    6,043

    Re: Gave Up on Facebook Groups

    Nice to hear you’re getting off the drugs! Your nephrologist is right, there’s no point giving an immunosuppressant if there’s no need. The Rituxan infusions pretty much come down to individual cases...
  10. Replies
    240
    Views
    96,873

    Re: Coronavirus and GPA

    I may ask my rheumatologist if he can check that after my next infusion (end of May/start June at this stage) . Second COVID shot is July 1. Remind me before then, otherwise I’ll forget.
  11. Replies
    15
    Views
    6,043

    Re: Gave Up on Facebook Groups

    Yeah, Facebook is not really a great resource for in-depth analyses of rare diseases. More likely than not, you’ll get roped into a group trying to sell you Activated Water or something (there are...
  12. Replies
    3
    Views
    1,867

    Re: Cryotherapy

    From what I’ve heard of cryotherapy, it seems a bit like the kinetic tape craze from a few years ago, but with more danger of injury. It probably will decrease inflammation temporarily, but it won’t...
  13. Re: How was my Health before coming down with GPA Vascular

    I was hit with a sudden pervasive rash and joint pain. No real trigger that I can pinpoint. Fortunately I live not five minutes from an excellent rheumy who got the diagnosis back within a few weeks,...
  14. Replies
    240
    Views
    96,873

    Re: Coronavirus and GPA

    I got my first AstraZenica jab ten days ago (phase 1B in Australia), then was told I should wait four weeks before getting the flu shot. I didn’t know what to expect, felt like I had a headache (but...
  15. Re: New Here - Possible GPA with Nasal involvement

    Thanks me2, I thought it might have been you, but couldn’t find the thread. Hopefully it never comes to surgery.
  16. Re: New Here - Possible GPA with Nasal involvement

    Here’s the thing. Your specialist, no matter how good, is not living your life and experiences. If your sleep is being interrupted, and you have a collapsed nostril, there may be sinus issues...
  17. Replies
    17
    Views
    7,006

    Re: Suspected Sneaky Kidney Involvement

    yes, isn’t it strange and wonderful how this disease can appear in soooooo many different ways? Just makes me weep with joy at the variety of life.

    Generally, I wouldn’t trust anything I read on...
  18. Replies
    17
    Views
    7,006

    Re: Suspected Sneaky Kidney Involvement

    Skin irritation (along with joint pain) was one of my first symptoms. I had angry red rashes come up over my torso and upper arms, itchy as hell and no indication of their cause. A dermatologist did...
  19. Replies
    17
    Views
    7,006

    Re: Suspected Sneaky Kidney Involvement

    Dude, sorry to hear about the flare, it’s something we all have to monitor for. Taking notes was a good idea as soon as you felt strange. In answer to your query; Wegs loves kidneys so much because...
  20. Replies
    240
    Views
    96,873

    Re: Coronavirus and GPA

    Just be aware the second dose can induce a stronger reaction, very flu like for a day or two. If so, that’s a good sign, means your immune system is working against the vaccine as it should. Just...
  21. Replies
    26
    Views
    20,318

    Re: Possible GPA flareup in the ear

    It sounds like it might be a syndrome called Long COVID, some recovered patients are reporting odd symptoms for months after the infection. Best thing to do is rule out Wegs first if that’s your main...
  22. Replies
    15
    Views
    8,274

    Re: Flare up and Rituximab route questions

    The worst part of Rituximab for me was manhandling the bag hanger into the toilet. Apart from that, it’s just a log boring day. I’ve never heard of anyone having any adverse reaction, though it’s...
  23. Replies
    0
    Views
    2,528

    For when you’re needing a pick-me-up

    Just click the link. I promise, it’s not a Russian hack or anything....

    :rolleyes1:

    https://youtu.be/fn3KWM1kuAw
  24. Replies
    104
    Views
    46,579

    Re: Covid vaccins and WG

    Don’t know about elsewhere, but in Australia we start rolling out mid February. We’re vaccinating essential/health workers first, then over 70s and people with comorbidities, then decreasing risk/age...
  25. Replies
    240
    Views
    96,873

    Re: research so far indicates vaccine is safe

    Thanks for the info and link, makes good bedtime reading. Am I being presumptuous in thinking 2021 may just be a tad better than that other year?
Results 1 to 25 of 49
Page 1 of 2 1 2