Search:

Type: Posts; User: MINDYB77

Search: Search took 0.00 seconds.

  1. Replies
    15
    Views
    5,896

    Re: Specialist in or near KY

    It didn't for me in the fall. They actually offered me an appointment within a week, if I'm not mistaken. My drs office messed up the referral, so I ended up getting online and chatting with a...
  2. Replies
    15
    Views
    5,896

    Re: Specialist in or near KY

    Yes, you would be a bit farther. I'm in NE Ky-Ashland. I definitely think it's worth the trip, but you might have more options in Lexington than I do here. We stay at the Tru by Hilton Cleveland...
  3. Replies
    15
    Views
    5,896

    Re: Specialist in or near KY

    I'm in Kentucky. I also see Dr Villa Forte at Cleveland Clinic. Also seeing a pulmonologist there who has been great! Dr. Thomas Gildea. It's about a 4.5 hour trip for us with stops. What part...
  4. Replies
    4
    Views
    2,046

    Re: Starting Methotrexate

    She is not comfortable with using rituximab at this point because I have had several lung infections over the last several months. I was bummed to hear this, but I understand her reasoning. I can be...
  5. Replies
    4
    Views
    2,046

    Starting Methotrexate

    I am finally starting treatment in about 2 weeks. Dr. Villa Forte wants to start with Mtx and Prednisone. I have a couple of questions. What is the time frame for remission with this treatment...
  6. Replies
    2
    Views
    1,197

    Re: Feeling frustrated.....

    That is great info! Thank you! I feel confident that the pulmo at CC is getting me straightened out. I was just very disappointed that it felt like Dr Villa Forte had not really even looked at my...
  7. Replies
    2
    Views
    1,197

    Feeling frustrated.....

    I was informally diagnosed by my pulmonologist in my hometown. I did the research and requested a referral to Cleveland Clinic. I saw Dr. Villa Forte 10/25. She did a bunch of new bloodwork and...
  8. Replies
    3
    Views
    9,967

    Re: My journey so far

    Sounds very similar to my experience. I've had lung issues for a very long time. I have bronchiectasis and was diagnosed with asthma for years until someone finally did a bronchoscopy and saw that...
  9. Replies
    7
    Views
    6,353

    Re: Trying to learn all of this

    Thank you! Prayers to you on your first infusion! I can imagine your fear, but I keep trying to focus on how it will make us feel better in the long run!
  10. Replies
    7
    Views
    6,353

    Re: Trying to learn all of this

    Thank you, Anne! Me too!
  11. Replies
    7
    Views
    6,353

    Re: Trying to learn all of this

    Yes, I took my biopsy slides and she sent those off to be re-analyzed. She said the report was not detailed enough for her. She was fantastic. I know I'm in good hands. We are about 4 hours away...
  12. Replies
    7
    Views
    6,353

    Trying to learn all of this

    I went Friday to see Dr. Villa Forte at CC. She was great. She spent about an hour and a half with me. She did a ton of bloodwork, of course. One just came thru last night. So, I'm positive for...
  13. Replies
    6
    Views
    2,937

    Re: New Patient appointment at Cleveland Clinic

    The nurse called me this morning from my pulmonologist's office with an appointment for January 27th, with neither of the drs I had requested. I got online and chatted with Cleveland Clinic and have...
  14. Replies
    6
    Views
    2,937

    New Patient appointment at Cleveland Clinic

    Has anyone been referred to Cleveland Clinic recently as a new patient? My dr was supposed to send in a referral on 10/4. I've called his office twice to follow up. Last week they said they were...
  15. Replies
    4
    Views
    10,275

    Re: In process of diagnosis

    Yes, I was so thankful to see his post and then research the drs at CC. It's a long drive but we've done it in a day for follow up appointments, so not terrible. My husband does the driving mostly,...
  16. Replies
    4
    Views
    10,275

    Re: In process of diagnosis

    Thank you! I had actually been reading and found this forum prior to my follow up appointment from my biopsy. I saw a comment you made about the 2 drs at Cleveland Clinic and I printed their...
  17. Replies
    4
    Views
    10,275

    In process of diagnosis

    I've had lung and sinus issues for years. I started seeing a new pulmonologist about a year ago and we have now reached a likely Weg diagnosis. He is making a referral to Cleveland Clinic for me. ...
Results 1 to 17 of 17