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I genuinely appreciate the long-time members who have the patience and kindness to regularly offer advice and support to those of us who rush in on diagnosis and then vanish. (That would be me, kind...

Hi Lisa - I saw the respirologist at VGH on Monday, he prescribed methotrexate (which I will start tomorrow, I'm a little worried about the side effects, but the current dosage is low), as well as...

Hi Lisa - Happy to share any info with you! My ENT - who I had never seen before, he's apparently new to Vancouver (possibly from China?) - is a very oddball guy, who - to his credit, in my case -...

Lisa - Thanks so much for responding so quickly (yay!). As mentioned, I was only diagnosed about 2 weeks ago, and kind of by accident, so I don't seem to have much of a plan at this point (viz. no WG...

Have there been any meetings of Lower Mainland folks lately? (The previous post was 6 months ago.) I just got diagnosed on Dec. 19/14 and would love to connect with others in person at some point.
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Thanks to everybody for the feedback, which seems to focus on situations that are similar to mine. Upper respiratory is definitely the issue with me (that I know of, so far) - and your comments,...

Hi Terry - thanks for the feedback. On some gut level, I've divined this is a major, permanent change, I guess I just needed someone to say "yup, me too". (I have no doubt that Pete's tagline, "Every...

Pete - thanks for the very descriptive rundown. The respirologist described my GPA as "mild" (thank heavens for small mercies!), so that is why I am hoping prednisone will do for the meantime, but I...

Given that I was only diagnosed 10 days ago, I am very new to the medication(s) and this condition. It would help me to have some feedback about what's happening.

The respirologist put me on 50...

Ailish - I am truly that shocked that doctors, knowing your diagnosis, would allow your supposed "cold" and "sinusitis" to go on for months and months. Those were exactly some of the symptoms I had...

This makes me feel ridiculously happy. (I figure we can all use as much dumb fun as we can get.)

https://www.youtube.com/watch?v=P9-FCC6I7u0

(My daughter showed it to me yesterday, as we sat...

Thanks to all the posters on this thread. Like you Gigi, I am new to this and fairly overwhelmed and confused. It's good to read positive, hopeful remarks - thanks to all of you who have been riding...

I had the very good fortune to be sent to the ER at VGH - it was the respirologists there that confirmed the diagnosis last week, and put me on prednisone. I have an appointment with them again on...

CadensMom, I suspect it's good to have a doctor on your side who's a bit frantic - at least you know your son's situation is being taken VERY seriously, and that they will be doing everything...

Thanks for the hello, Christina!

A little whine....I was a bit premature in my initial posting, saying that I could walk, btw. I now have a limp - my left foot (along with about 12 other joints)...

Thanks to everyone for their kind comments. I am hoping, Pete, that I will get to the stage where you are. I'm fairly fortunate, Terry, that I don't seem to have any other major health issues (other...

Like many of you, I have had a run of very bad health (sinus infection, terrible cough w/laryngitis, then severe aching joints and swollen thyroid) for months, all while trying to work. Everything...