Hello friends!
I had a couple of questions. I am recently diagnosed with Wegener's. I have involvement in my sinuses (had decompression), saddle nose, and airway. I have just recently finished my...
Type: Posts; User: jeother
Hello friends!
I had a couple of questions. I am recently diagnosed with Wegener's. I have involvement in my sinuses (had decompression), saddle nose, and airway. I have just recently finished my...
Hi everyone! I am 3 infusions in of my 4 weekly infusion cycle. So far I haven't had too many issues with the medication. I have some general fatigue a couple days out from the infusion that lasts a...
Hi Gab! Glad you got a quick diagnosis. Are you feeling better after your infusions? My older daughter is coping pretty well. She is a tough kid and has had to deal with a lot worse with my son. We...
Hi Pete! Thanks for your response. No alarm at subglottic stenosis, so no worries. ☺️ I am actually very familiar with it. My son has a grade 3 subglottic stenosis and has a trach as a result. I've...
Hello everyone! Just wanted to introduce myself. I am 34, married momma to 3 beautiful kiddos...13 and 8 year old girls and a 2.5 year old pistol of a boy. He is special needs because he was trached...