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    Rising pr3 now at 26

    Is a pr3 of 26 high enough to cause symptoms especially hot flashes at night. Was scheduled for a digoxin infusion delayed for a month because of the corona virus.
  2. What a terrible disease, I wish you the best!

    What a terrible disease, I wish you the best!
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    neuropathy and WG

    Hey everybody, I've been dealing with WG since 8/2013 and I'm doing pretty good. My PR3 is still at 48 so I'm still getting RTX every 2 month. My feet and legs get really red and my feet burn...
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    I have a pulmonary doc and an oncologist for my...

    I have a pulmonary doc and an oncologist for my treatment. I did see an ENT and an infectious disease doc for a checkup but don't have to see them again unless something comes up!
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    Sorry to be so long getting back to you! I was...

    Sorry to be so long getting back to you! I was diagnosed in late August after a 15 day hospital stay. I had a broncoscopy, which didn't show anything, and finally an open lung biopsy, and this is...
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    Are your lungs or kidneys involved? With the...

    Are your lungs or kidneys involved? With the possibility of WG, have they looked at your lungs or kidney function? My symptoms started with a stopped up ear in early spring, and the docs said there...
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    I was diagnosed in late August, had the 4 rtx...

    I was diagnosed in late August, had the 4 rtx infusions, now having an infusion every 2 months, coming up on my 6th one next week. I have bouts of dizziness but have always thought it was my...
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    Has your doctor considered Rituxin instead of...

    Has your doctor considered Rituxin instead of cytoxin?
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    Am I having a flareup!! Help

    I was diagnosed in late August, and have been on steroids plus Rituxin infustions. I have been weening myself off steroids and am down to 2.5 mg daily for 10 day. Tomorrow I'm suppose to go to the...
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    Saying a prayer for you! I am tapering off pred...

    Saying a prayer for you! I am tapering off pred too, down to 20 mg for a month, then 10 mg I guess. I have ear issues, and sinus trouble too, hope they don't get worse!
  11. Thread: Hi from KY

    by sectech1
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    Thanks for getting back to me and for the advice....

    Thanks for getting back to me and for the advice. I am going to try to find out if there are any specialists in my area. My pulmonary doctor is really nice and seems very involved with my case, he...
  12. Thread: Hi from KY

    by sectech1
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    Hi from KY

    I'm glad I found this website. I had never heard of Wegener's until I was diagnosed with it at the end of August. I had breast cancer and chemo from February until April, 2012. Can't help but...
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    Hi there, new to this site. My right ear was...

    Hi there, new to this site. My right ear was stopped up for a couple months, then I had autophoney in that ear, I think its called that, when you hear yourself breathing, and your voice is so loud...
  14. Thread: 1st Relapse

    by sectech1
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    Hi there, can you please tell me how to make a...

    Hi there, can you please tell me how to make a new post, the only thing I have figured out how to do is to reply to a post! I was diagnosed with WG in August after spending 5 and then 10 days in the...
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    Hi, I am new to this site, having trouble...

    Hi, I am new to this site, having trouble figuring out how to post! Help please!
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