Search:

Type: Posts; User: Alysia

Page 1 of 20 1 2 3 4

Search: Search took 0.07 seconds.

  1. Replies
    20
    Views
    378

    Re: Covid vaccins and WG

    Sounds tough... I am sorry. Sending you prayers.

    How are you doing ?

    I did have "pneomonia" which was wg flare. Had it in 2 or 3 flares.
  2. Replies
    20
    Views
    378

    Re: Covid vaccins and WG

    I hope that you have recovered ?

    Maybe it was some food poisoning ? If I remember correctly, you have MC like I do, so we are very sensitive to many kinds of foods.
  3. Replies
    6
    Views
    76

    Re: Wegeners charity

    This is the link for the donation thread:

    https://www.wegeners-granulomatosis.com/forum/threads/3394-Donations?highlight=Donations


    @andrew is doing a wonderful work here, without any...
  4. Replies
    20
    Views
    378

    Re: Covid vaccins and WG

    This one is more promising then any vaccin and they have started the trial in UK:

    https://www.bbc.com/news/health-55022288

    Quote:

    A possible alternative to a vaccine, for people without...
  5. Replies
    20
    Views
    378

    Re: Covid vaccins and WG

    I have found 2 articles in the facebook vasculitis UK group.

    The first - things are complicated...
    ...
  6. Replies
    20
    Views
    378

    Re: Covid vaccins and WG

    me2 and NatriceRomeo - sending you prayers for an easy and perfect recovery. Can you, please, share what are your symptoms ? WG and covid might be too similar. With every morning coughing I would ask...
  7. Replies
    10
    Views
    227

    Re: Infections from mosquito bites

    So it must be the smile :biggrin1:
  8. Replies
    20
    Views
    378

    Covid vaccins and WG

    Hi, how are you doing out there ?

    I suggest we will collect here all the questions and medical info we can find on this subject, like professional articles or if someone has the chance to discuss...
  9. Replies
    10
    Views
    227

    Re: Infections from mosquito bites

    Now that I think about it, I was also not beaten by mosquitos for many years now. Maybe it's the pred :flapper:
  10. Replies
    21
    Views
    531

    Re: Ear, Nose and Eye involvement.

    Welcome to the forum. How can we call you ?

    In my humble opinion, your WG is too active for mtx or Imuran, and needs a more powerful med like rituximab.

    Can you consult a WG specialist ?
    ...
  11. Re: G'day Mate.. From Australia,Land down under

    Welcome Dutchie and congratulations for your triplets :hug3:

    Like Pete wrote above, I do have a saddle nose because of WG but I am not going to fix it soon or probably ever. One needs to be in...
  12. Replies
    972
    Views
    112,281

    Re: pberggren memorial thread

    Today, 6 years ago, my beautiful Phil flied high with his Batman wings, to spend eternity with Our Lord.


    I wrote to him:


    Sweetie,


    I can't believe it has been 6 years since you went...
  13. Replies
    972
    Views
    112,281

    Re: pberggren memorial thread

    Thank you, Michelle and Anne, from the bottom of my heart, for your beautiful and comforting words, and for being here all the way. I love you.
  14. Replies
    17
    Views
    1,042

    Re: Coping with stress on current pandemic

    Please read this one:

    https://abcnews.go.com/Health/cdc-death-report-fauci/story?id=72759172

    Dr. Fauci was the one who established the treatment protocol of ctx plus pred for weggies more then...
  15. Replies
    17
    Views
    1,042

    Re: Coping with stress on current pandemic

    Behaving like there is no covid - doesn't mean that it is not there. Worse - it only causes more spread of it due to not caring.

    Israel is in a huge problem now because of this kind of attitude:...
  16. Replies
    972
    Views
    112,281

    Re: pberggren memorial thread

    Thank you, Natty. You are very kind. I hope that you are doing well. God bless you.
  17. Replies
    972
    Views
    112,281

    Re: pberggren memorial thread

    Phil's father passed away couple of days ago. He was very sick in the last 3 years or so and suffered a lot.

    I was in contact with him and with Phil's mom couple of times a week on line and will...
  18. Replies
    4
    Views
    372

    Re: Wegener's and surgery

    As far as I know we need to increase the pred and take extra antibiotics.
  19. Replies
    168
    Views
    20,535

    Re: Happy Birthdays Thread

    Happy Birthday marta :wub:

    I hope that you are doing well and that you birthday was (yesterday ?) As awesome as you are :hug3::hug3:
  20. Replies
    168
    Views
    20,535

    Re: Happy Birthdays Thread

    Hi gilders :hug3: I hope you still had a joyful birthday in spite of the restrictions.

    Do I remember correctly that you got your new kidney around your birthday ?

    Can your wife switch to...
  21. Replies
    168
    Views
    20,535

    Re: Happy Birthdays Thread

    Happy Birthday @Pete and gilders from @pberggren1 and from me. May you have an awesome day.

    Not sure how bad is the covid at your area and how you can celebrate your day but I hope it will be...
  22. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Welcome to the forum, Gary. I think you must get second opinion from the best experts possible.

    I live in Israel but my WG dr. Consults with prof. Jayne in Addenbrook. I tag @Geoff and...
  23. Thread: Happy Birthday

    by Alysia
    Replies
    6
    Views
    360

    Re: Happy Birthday

    Yes, Anne, chocolate works well for me :biggrin1: cheers :hug3:

    (Thanks for your kind words... :blushing: )
  24. Thread: Happy Birthday

    by Alysia
    Replies
    6
    Views
    360

    Re: Happy Birthday

    I came to the forum to wish Anne a Happy Birthday on the birthdays' thread, but will use this thread now. Thanks Masha.

    Happy Birthday, dear Anne. I love you and I feel blessed to call you my...
  25. Thread: Site statistics

    by Alysia
    Replies
    2
    Views
    429

    Re: Site statistics

    Haha yes! By a significant number.
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4