Search:

Type: Posts; User: Pete

Page 1 of 20 1 2 3 4

Search: Search took 0.03 seconds.

  1. Replies
    17
    Views
    1,001

    Re: Managing symptoms and treatment for a flare

    The Vasculitis Foundation and the American College of Rheumatology just published their guidelines and recommendations for treating ANCA Associated Vasculitides.
    ...
  2. Replies
    14
    Views
    6,388

    Re: Pred Taper Completed

    As of yesterday, Iíve been off daily pred for three years. Still feeling good!
  3. Replies
    2
    Views
    126

    Re: We have got a healthy baby

    Kitekite

    Congratulations on the birth of your strapping boy!! Glad to hear all is well!!
  4. Replies
    9
    Views
    819

    Re: I am a new member & fairly newly diagnosed

    KathyTPA

    You might want to investigate this a bit: https://www.bizjournals.com/tampabay/news/2016/09/28/bay-area-hospital-joins-mayo-clinic-network.html

    You may be able to have your local doc...
  5. Replies
    3
    Views
    326

    Re: First post - diagnosed in 2012

    Welcome to the club no one wants to join.

    Your disease onset sounds like the first couple of weeks of mine. Glad you have a doc who is giving you proper care. Thatís the majority of the battle...
  6. Replies
    17
    Views
    1,001

    Re: Managing symptoms and treatment for a flare

    drz

    Wow!! You and your docs have their hands full to get you stabilized. Hope they do so quickly!!

    As for rtx. The drug itself doesnít seem to give me any side effects. I get a slight reaction...
  7. Re: Need a good Wegeners rheumatologist in Phoenix.

    Go for it!! You've got a lot to lose if you don't!! Good luck!!
  8. Re: Need a good Wegeners rheumatologist in Phoenix.

    Birdie

    Maybe itís time to get your Comgressman involved. The VA should be putting you first, not their f****d up bureaucracy.
  9. Re: Need a good Wegeners rheumatologist in Phoenix.

    Dirty Don This one’s for you...
  10. Replies
    2
    Views
    221

    Re: Rituxan side effects two weeks later

    I have no recollection of nausea as a side effect of rtx. You might want to check with your wegs doc and/or primary care doc. Just because you have wegs doesn't mean something else isn't going on...
  11. Replies
    14
    Views
    3,656

    Re: High Blood Pressure and Fast Heart Rate

    I met with my cardiologist today. I asked him about the cause of my elevated resting pulse rate. When I was younger and in great shape, my resting pulse rate was generally in the 60s. Now, at age 74,...
  12. Replies
    17
    Views
    1,168

    Re: Suspected Sneaky Kidney Involvement

    I ask out of ignorance and confusion: what analgesics can people with kidney issues take safely? I have stage 3 CKD thanks to GPA.
  13. Replies
    13
    Views
    1,046

    Re: Reactions to Covid-19 vaccinations

    I had a sore arm at the injection site for about 24 hours after both shots. About 18 hours after the second shot, I had flu-like symptoms that lasted for about 18 hours. I had chills, muscle aches,...
  14. Replies
    236
    Views
    36,448

    Re: Coronavirus and GPA

    This makes me a little nervous. I got 500 mg of rituximab four weeks after my second Pfizer shot.

    Autoimmune-disease drugs may reduce vaccine response; antibody treatments ineffective vs Brazil...
  15. Replies
    15
    Views
    4,421

    Re: Flare up and Rituximab route questions

    Lea

    I went to rtx from mtx because I was having too much fatigue from mtx. I was on both for a year, but my doctor decided I only needed rtx going forward.
  16. Replies
    11
    Views
    3,247

    Re: Possible GPA - nasal deformity

    Rae82

    I was reviewing this thread to see which doctors you have consulted and did not see a reference to an otolaryngologist (ear, nose, and throat). Since your blood work doesnít indicate GPA, it...
  17. Replies
    10
    Views
    2,325

    Re: Ongoing Sinus Issues

    Hi Robert,

    I hope you live reasonably close to Cleveland so that you can see Dr Alex on short notice if the nasal symptoms become more active. I call rheumys the doctors of mystery diseases. I...
  18. Thread: Wegners in ears

    by Pete
    Replies
    14
    Views
    4,637

    Re: Wegners in ears

    Answer to your first question is yes. The answer to your second question is beyond my body of knowledge.

    Good luck!!
  19. Thread: Wegners in ears

    by Pete
    Replies
    14
    Views
    4,637

    Re: Wegners in ears

    BAHA=bone anchored hearing aid

    Rush Limbaugh wore them.
  20. Thread: Wegners in ears

    by Pete
    Replies
    14
    Views
    4,637

    Re: Wegners in ears

    Hearing has been my most pronounced ongoing GPA issue. Before disease onset, I had tinnitus (high pitch squeal) and some hearing loss due to environmental causes (military and worked in steel mills...
  21. Replies
    11
    Views
    3,247

    Re: Possible GPA - nasal deformity

    Hi Rae,

    I donít have any experience with saddle nose deformity, but annekat and Alysia do. Hope they chime in soon.
  22. Replies
    236
    Views
    36,448

    Re: Coronavirus and GPA

    My wife and I got our second doses of Pfizer vaccine on 2/23. My wife had minimal reaction to it, but I had flu-like symptoms for about 24 hours. Feeling normal now. Next rtx is March 22.
  23. Replies
    73
    Views
    19,475

    Re: Covid vaccins and WG

    Update: Iím almost 48 hours past my second dose of Pfizer. I had some pronounced side effects yesterday ó fatigue (I took a two-hour nap yesterday afternoon and went to bed a couple hours early last...
  24. Replies
    73
    Views
    19,475

    Re: Covid vaccins and WG

    My wife and I got our second dose of Pfizer vaccine yesterday. Weíre so thankful to Ohio State University for the great process to schedule and administer these vaccines.

    If you have access to...
  25. Thread: Avacopan

    by Pete
    Replies
    18
    Views
    3,975

    Re: Avacopan

    Looks like avacopan will be approved to treat ANCA Associated Vasculitis soon.
    ...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4