I was diagnosed 7 years ago, and have had the same experience. I do have neuropathy in my hands and feet, but overall, am feeling great. Exercise (and meds!) is key, I think.
Type: Posts; User: novastorm
I was diagnosed 7 years ago, and have had the same experience. I do have neuropathy in my hands and feet, but overall, am feeling great. Exercise (and meds!) is key, I think.
I am fortunately currently in remission and have been on maintenance MTX. My bloodwork consistently shows ANCA negative. But my PR3 has been increasing. In August my PR3 was 5.5, and it's now 29.5. I...
I may be an outlier here, but figured I'd share my good news. I am on maintenance 20 mg of Methotrexate only, not Rituxan. I had first 2 Pfizer shots in Jan/Feb, and got a Moderna booster in August....
I got my third shot on Monday. Sore arm and a minor headache reactions, but nothing else. Stopping MTX for 2 weeks.
It seems that most in this forum are on Rituxan. I am fortunate enough to be on just maintenance Methotrexate. Has anyone who is just on methotrexate and had the 2 dose Covid shot also had Covid...
I have had both Pfizer shots with no side effects. I stopped MTX for 2 weeks for each shot. Here is a good summary of thoughts regarding MTX maintenance with the Covid vaccine. ...
I'm scheduled to have vaccine tomorrow, the day after I take my weekly Methotrexate dose (17.5 mg). I am not on Rituxan infusions at all. Has anyone else had a similar situation (taking Mtx before...
As best I can determine, Rituximab and biosimilars are manufactured around the world and in the US.
Oh yes. my mtx dose was increased in response to the rising PR3.
My GPA experience started in December 2016 when I started having night sweats every night. Not just a little night sweat. But the kind of night sweat that soaks your clothes and bed clothes. I felt...