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Type: Posts; User: shankxonline

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  1. Re: San Francisco Bay Area - anyone from here?

    Hi Patrick - whom are you seeing in UCSF?
  2. Re: shankxonline - My path to identify GPA and overcome it

    Indeed - positive attitude is everything, sshiveley! Seems like the only thing we can have control over!
    Good luck on your journey as well! Keep sharing!
  3. Re: Journey to being diagnosed, treated, and already first flare up

    Thanks for sharing your journey. It is indeed frustrating not knowing what to look for remedy and the unknown nature of what flares up when can be frustrating. I guess it helps each one of us to...
  4. Re: shankxonline - My path to identify GPA and overcome it

    11/6 - Starting with Methotrexate (12.5/week) along with Prednisone currently at 40mg. Rheu is optimistic that I will be able to taper the Prednisone dosage. Anyone else on similar dosage? How was...
  5. Re: shankxonline - My path to identify GPA and overcome it

    Hello All - didn't get a chance to come back to this wonderful family with update. 1025/19 - got my kidney stones removed, things went back to normal on blood tests (CRP, ESR etc) and MRI scans came...
  6. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    tac - thanks for sharing. We indeed share commonality of onset symptoms and I am worried about what follows. Everyone seem to have different experiences regards to where it flares. Curious - what was...
  7. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    tac - thanks for sharing. We indeed share commonality of onset symptoms and I am worried about what follows. Everyone seem to have different experiences regards to where it flares. Curious - what was...
  8. Re: shankxonline - My path to identify GPA and overcome it

    Update 9/10/19: Had my kidney stones removed surgically - so one of the parameters is gone. Planned MRI of head and orbits planned followed by more tests I assume. Not knowing if its GPA and where...
  9. Replies
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    Re: Hello from Shawny

    Thanks for sharing your story, Shawni and I hope you get the right dx and be back well soon. I am going through similar period of unknown-ness and it feels important to get as many tests done to get...
  10. Re: shankxonline - My path to identify GPA and overcome it

    My Rheu is still figuring it out. Its just me not wanting to continue on Prednisone (or any steroid) for long period if possible. I don't know what long means. Right now at 40mg per day.




    Her...
  11. Re: shankxonline - My path to identify GPA and overcome it

    Hi Anne - they have concluded that my kidney issue is different from the (possible) GPA issue which seem to have suddenly shown up at the same time. I am having surgery to get kidney stone out from...
  12. shankxonline - My path to identify GPA and overcome it

    I am going through a lot of blood tests, urinalysis, CT scans, MRIs ... just to get to know if its GPA, which organs are affected and then get away from current Prednisone to a non-steroid...
  13. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Thank you drz! Chasing the tests and various organs and meds for now.
  14. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Thank you for sharing your story, sshiveley. Indeed these initial days are very tough without knowing what the disease will bring every day. I am running through a lot of tests just to get to the...
  15. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Thanks Pete!
  16. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Thanks Andrew for your reply and for starting and maintaining this excellent forum. I have a follow up with Nephrologist today and will keep you posted.
  17. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Thanks Masha. Will check out Stanford Immunology
  18. San Francisco Bay Area - anyone from here?

    San Francisco Bay Area - anyone from here?
  19. Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Hello All

    I am from San Francisco area and recently have been told that I might have GPA. Came as a complete surprise from what I went through in last one month. Happy to have a "name" to my pains...
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