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  1. After a year and 3 months of septra ds and 10mg...

    After a year and 3 months of septra ds and 10mg prednisone, I was considered in remission and was able to quit the septra ds. I just quit the weaning off ofprednisone which took about 5 more months....
  2. I agree with the prednisone comment. Anything...

    I agree with the prednisone comment. Anything over 10mg.... and even after you taper lower than ten, it still takes some time to get your patience, sharpness, and "normal" feeling back. I'm finally...
  3. Imuran was blocking antibiotics from killing my infection it caused.

    I need to share this story in case someone else is battling an infection they can't get rid of like I was for six or more months. I have been in the hospital five times from oct thru December. I've...
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    Sangye, I believe Phil said the doctor said the...

    Sangye, I believe Phil said the doctor said the lung issues are from the TB. He is on three different medicines for the TB and not having any problems taking them so far. They think 4 or 5 days and...
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    Update on pberggren

    Phil wanted me to let you all know that he is now in isolation at the hospital and will be for a week or so. They have diagnosed him with TB. He wont be able to post for awhile so if you have any...
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    Thanks all. The doc up'd my imuran to 125mg from...

    Thanks all. The doc up'd my imuran to 125mg from 100mg and the prednisone down to 9mg a day(down one mg). The sinus infection is finally gone after two months. My pr3 went up from 46 to 48 but all...
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    I was told being on the Imuran is most likely the...

    I was told being on the Imuran is most likely the cause of the delay in getting rid of the infection. I cant take levaquin or most of the antibiotics they wanted to put me on. I took doxycycline and...
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    I'm on imuran for the treatment of wg. I'm now on...

    I'm on imuran for the treatment of wg. I'm now on 100 mg a day. The first month, I would take it at night instead of the am because it made me fall asleep. That however, was after the violent...
  9. Thread: leg cramps

    by firecracker
    Replies
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    12,154

    Im glad to see this thread is talking about...

    Im glad to see this thread is talking about prednisone since that is basically what i need to talk about right now and I was told how to make my own thread but i cant find the directions or figure it...
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    I lost all of my septum years ago from wg. I my...

    I lost all of my septum years ago from wg. I my nose also moved around like you are describing. I gat a red blotch everyday on the right cheek where my wg is the worst. Mine is all sinus and nose...
  11. Thread: leg cramps

    by firecracker
    Replies
    80
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    12,154

    I hallucinated when I took it. I saw black...

    I hallucinated when I took it. I saw black shadows and things flying around in my side vision. It made me feel tired but i couldnt sleep. I just ached all over. Then i started getting that dry cough,...
  12. Thread: leg cramps

    by firecracker
    Replies
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    12,154

    I find it strange that when I took mtx, I was up...

    I find it strange that when I took mtx, I was up to 17mg i think it was and I could not sleep for days after I took it. I felt like I had the flu everyday.. esp the day I took it. The longer I took...
  13. Thread: leg cramps

    by firecracker
    Replies
    80
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    12,154

    Thanks! that makes me feel a lot better about the...

    Thanks! that makes me feel a lot better about the imuran. I mean, the mtx SUCKED. i hated that crap. i truly felt like i was being poisoned weekly more and more.. and i think i was. i felt worse and...
  14. Thread: leg cramps

    by firecracker
    Replies
    80
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    12,154

    it sounds so easy. i think it probably has...

    it sounds so easy. i think it probably has something to do with the beer i was/am drinking that makes things a little hard to figure out lol. i know.. bad.. beer. but just tonite then off to imuran...
  15. Thread: leg cramps

    by firecracker
    Replies
    80
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    12,154

    Thanks Sangye. i didnt think into it that far...

    Thanks Sangye. i didnt think into it that far that i may be actually removing the meds. i also can not figure out how to post a new post asking about imuran and i cant find any posts about it either....
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    I have what they say is limited wegeners. I also...

    I have what they say is limited wegeners. I also am concerned that the mtx wont work for you. I was feeling better before I took it. I felt worse when I did. I was sick to my stomach longer and...
  17. Thread: leg cramps

    by firecracker
    Replies
    80
    Views
    12,154

    Im glad the magnesium is helping. Im not sure if...

    Im glad the magnesium is helping. Im not sure if I mentioned the milk thistle or if you read about it but it helps clear toxins from your liver. Since most of us are on these hardcore meds that...
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    I def agree on the mtx not being strong enough to...

    I def agree on the mtx not being strong enough to knock out the active weg. I just hope something is. Like what i am about to take. Mayo is who put me on mtx but it was the florida mayo.
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    You sound just like me way too much. Years of...

    You sound just like me way too much. Years of doctors guessing meanwhile chunks of stuff coming from your nose and damage done that was unexplainable. I took mtx for 8 months starting two septembers...
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    Its pretty sad that i have to play doc in order...

    Its pretty sad that i have to play doc in order to get relief. I mean sht, with these #s the doc should have at least upd the pred. But no, dr jenni must do it herself. I was thinking about telling...
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    Update from my rheum today

    Friday i get a call from the nurse saying "we need you to call us back asap about your bloodtest results". this is friday....at like 4 or 5. im working. I call at 501 and they are gone for the...
  22. Thread: nosebleeds

    by firecracker
    Replies
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    8,733

    i always wear my seatbelt but yet again, no...

    i always wear my seatbelt but yet again, no airbags. Then again, I am glad they did not deploy. they would have broken my nose and that would have been worse for sure. I was driving northbound when a...
  23. Thread: nosebleeds

    by firecracker
    Replies
    40
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    8,733

    Well, you know when I disappear from here, I am...

    Well, you know when I disappear from here, I am either in bad shape or really good shape. It went more from like... car accident to massive pain in my face.. thanks to smashing my face into my...
  24. Thread: nosebleeds

    by firecracker
    Replies
    40
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    8,733

    LOL man!! you and I are two peas in a pod lol. I...

    LOL man!! you and I are two peas in a pod lol. I used to spend hours and I have pics of things that are bigger then my pinkie finger lol. gross yes but amazing
  25. Thread: leg cramps

    by firecracker
    Replies
    80
    Views
    12,154

    I also had the leg cramps. I thought they were...

    I also had the leg cramps. I thought they were from the mtx but they were from the prednisone. they have let up again for the most part at least.
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