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debra, you are a very caring person yourself! As I read your post, You worry when people aren't on here, you always have a kind word for the people who posts in the forum, yes even mine. Your very...

Thank you birdie and debra, I truly appreciate your input! I can now feel relieved I'm not the cause of this!! Now my mind is wondering, maybe you both can put it at ease once again... In either 2008...

Wow! Very nice Annekat!!

Middlesista, I asked Kyle how it was.. Then he asked me What is it? I told him that on our forum you had asked.. I had read on here someone had said to get copies of blood tests results or test...

I had read also, drink drink drink and drink more water than ever.. Clean that Cytoxin out of bladder! Every time I would talk to my son, I would ask.. Are you drinking lots of water? Is your bladder...

I hope your doing fine now drz! Thanks for info!

Thank you Me2 for responding and for making me reread my post! I see now I was very unclear, could have been the anger, tears, the lack of knowledge and poor note taking while talking to my son. I do...

Good evening Forum Friends, when does the roller coaster of this damn disease end? Yesterday before my son had his first infusion his Dr. did some tests. There was blood in urine, he is thinking...

Yes Deb.. I don't plan on going anywhere! I wish my son would sign in and see these messages.. I have taken screen shots and had him read them. I even suggested to my daughter in law to join. I told...

Good evening Forum Family. I have an update on my son, Kyle, first Rituxin infusion.. He had only 1 reaction and it was early into infusion.. 1hour. His head started getting red and itching horribly....

Middlesista, I am a middle sister between sisters, but have 4 older brothers... But, you are so correct in the case of when both parents are deceased. Sadly, we have drifted apart. I do keep in close...

Very talented Anne. So very pretty!

I did not know this! Makes sense though...Thanks for sharing..

Thanks Deb, I will keep you posted! This seems to be my go to place when I get overwhelmed reading all the stuff on the Internet. Here I seem to get truer facts and opinions from real people who have...

Thanks for your input Pete! It gave me an insight of what he will sort of be going through. He has this infusion done at the Cancer clinic in the hospital. Is he allowed any visitors to be with him?...

Thank you sbryan1, I will pass on this information to him. I was reading earlier on the medicine page of Rituxin, side effects and what can happen with infusions.. Yes it scared me! Thank you for...

DrZ, I used your quote tonight with my son. I told him to read about his first infusion because knowledge is power.. I also told him to check back in to this forum and read some of the post about...

Debra, thanks for responding to my rant earlier. I do appreciate it. I talked to my son earlier this evening and asked him about his pain. He also said his is like a burning pain that hurts like...

Birdie, Yes! This is a great place to learn about Wegeners.. My next course of learning is going to be on Rituxan.. His first infusion is on Monday.. So it's going to be a crash course!

Drz, the Dr's took him off of Cytoxin a couple of weeks ago and lowered his prednisone. He is currently taking prednisone, bactrim, and levoflaxacin. Monday he has his first infusion of Rituxan.....

My son went to hospital ER tonight with severe pain in left leg. I don't know how to post pictures, but he has a rash on his leg , which is new. Dr's. on call has given him 2doses of pain meds that...

Thank you, will check it out!

Vdub, I am from Kansas, My son just had his first visit with Springer the first of the month at KU Medical Center. Kyle said he was different. But aren't all good specialist? Not much for having a...

Pierre 42, you sound very wise! I have a question.. There are vitamins, 'out there' (stores), that claim to build your immune system.. If one is taking medicine to destroy your immune system, should...

Thank you WG Mom, I as you were asking almost daily, how he is doing.. Somedays I still do.. If I didn't hear from him, I texted him. I never want him to think this is how I define him. He is so much...