Since my recent flare Probiotics is a thing I have decided to try. I'm just taking Yakult but will try the tablets when I run out of them. Don't know if it's helping but can't do any harm or CAN...
Type: Posts; User: Carol
Since my recent flare Probiotics is a thing I have decided to try. I'm just taking Yakult but will try the tablets when I run out of them. Don't know if it's helping but can't do any harm or CAN...
Used Herbs to get off Pred
I tried to go off the last 5mg over winter and just couldn't so left it until it was warmer. I then went to a compounding herbalist - well known - not obscure - and told...
After bing sick for about an month and being on Imuran, Pred and Bactrim I lost feeling in both my arms within about 1/2 an hour and had to then start on cyclophoamate? infusions. I also lost sight...
I'm just having my first flare after my initial diagnosis 6 years ago. I'm very emotional as at my last 6 month check I virtually told my rheumy that I didn't need him any more. I'm eating humble...
Hi Lilly I am the one who spoke about Meditation ages ago. there are many meditation CD's around - you just put them on and listen. Kelly Howell is well know for her meditations - but you need to use...
yes I was and am still occasionally nocturnal. Somewhere I read that our sleep patterns go in 20 min cycles. So I would get up and generally about 40 mins later I would feel sleepy. I learned to...
Hello Yes the rinses are just so good as they helped me remove the crusting down the back of my throat. I know this sounds disgusting but we're all Weggies or their families here so it's OK. I was...
I did alot of googling when I had nerve damage from the Wegs and the only thing that seemed to come up was WSN Nerve support Formula from the US. I took this on and off for about 12 months. My feet...
I haven't been on this site for ages so just letting you know how well I am now 5 years later. I am only on Bactrim twice a week now and do most things normally. I turned 60 yesterday and had a...
Hello, I'm Carol and I got Wegs 5 years ago. I've just turned 60 YESTERDAY and am fortunately quite well. I can highly recommend meditation as part of your healing process. There are many guided...
After a failed attempt these are the things I did to get off Pred. It may sound a bit whacky but it worked like a breeze.
1. I waited until the weather was warm
2. Every day I spoke to my adrenals...
I too have just found some nodules on my thyroid. I've done some googling and it seems it can be part of Wegs. Any info what others have found would be great.
Carol from Australia
Just when I thought everything was really going well, I had some big days and increased levels of stress (after I put my hand up to go President of a Club and had to face the AGM) I came down with...
Uggh boots have been wonderful for me here in Australia. They are genuine lambskin lined - beware of fakes made out of synthetic. The lambskin is very soft and easy on feet but you get into bad...
I hardly ever go on this site now because I am so well after being diagnosed 4 years ago, or was it 5????
I'm still on 3 Imuran a day and Bactim 3 times a week. It seems to work very well. A big...
I'm from Australia and I import from USA Nerve Support Formula for my neuropathy. It's a form of Vit B. You have to take quite a few a day - I take them for a few months then get tired of them as it...
Maybe the Neilmed bottle would give you just a little more pressure than a neti pot. Half way through the rinse I would actually draw the water back down the back of my throat as the crusting was on...
Sometimes you just have to think of pred as your friend. I knew that at some stage I would be off it( and I am) I allways blessed my medication, feeling grateful that it was available to me and the...
The nerve damage in my feet is very painful at the moment and was researching on the net and saw Neuroveen a homeopathic treatment. Has anyone tried this or heard about it. i'd have to import it into...
I have registered as an oran donor but now I have Wegeners are any of my parts OK to donate? Just think it would easier on family if I found this out. I will contact the organ donor organisation too...
Hi Sanje
Yes I tried Nerve Support Formula which is 1000mg Methylcobalamin B - 12 with Thiamine 103mg. I ordered it through USA because it was not available in Australia. I do think it helped and...
The nerve damage in my feet seemed to have stopped improving and have recently felt numb on the ball of my foot. Can you tell me if Lyrica actually healed your nerve damage or just took away the...
I take bactrim DS three times a week. I've been on that for 2 1/2 years now. I seem to tolerate it well which surprises me. Carol
Hi elephant, yes I had terrible sinuses to begin with, bleeding, caking, build up in the back of my throat etc BUT they are so good now except for a little bleeding.In fact they are the best they...
I did a bit of research and came up with Magnesium for cramps. I started taking it and I'm sure it helped. Then I had to start taking Calcium so one of the calcium tablets have the magnesium added so...