This drug sounds exactly like many of us need! Would love to be in the trial of this, hope is on the agenda for a cure for all of us. Sherry
Type: Posts; User: sshiveley
This drug sounds exactly like many of us need! Would love to be in the trial of this, hope is on the agenda for a cure for all of us. Sherry
I too am blown away by this diagnosis, but looking back, it all makes sense, dealing with this has been difficult. Flare ups continue, the fatigue is hard to deal with, but I am finally getting a...
You mentioned UC in Cincinnati, have you considered OSU in Columbus? Dr. Alexandria Meara is my rheum.
I don't post a lot on here, as I too am new to this ugly disease, there are so many that have so much more knowledge about this than I do, so I will continue to read their thoughts and advice. There...
Lea- I, like you, considered myself healthy too, what a throw back to watch my life being turned upside down. You are in the right place joining this group. I went back to work in the ER after being...
I take 1 step forward 2 steps back. When I had written that I was down to 7.5 mg of Prednisone, yet another flare up, I was weaning slower this time. Rt eye is beginning to protrude again, Double...
My Dr specializes in Vasculitis, I am hoping the rituximab in December will do the trick. Seems as though when I taper down, symptoms flare up again, gee, even my freakin heels hurt now. I taper 2.5...
My WBC is elevated to 16.39, Segs and Bands are 13.20, C-Reactive protein 10.8, Proteinase 3 antibodies and ANCA still read Positive, no numbers given. My Doc is weaning me from 40mg down to 7.5mg,...
Annekat- Our symptoms are so similar to each other, ugh, I hate this disease! But you are right, we are much better off than some. I am down to 7.5mg Prednisone, my voice is hoarse a lot of the time,...
I definitely know what you mean about the prednisone tapering and flare ups, I was weaning down, then the sinuses started again, constant coughing and hoarse throat. I am now down to 7.5 mg and feel...
I am so sorry that you don't have the support you need, that is the worst, dealing with this on your own. If you have walked on egg shells with stress and anxiety in your marriage, maybe after you...
The same with me during the infusions, I just want to sleep, I think it is the Benadryl, lol
Your post makes me feel bad that I even complain about my issues with GPA, you have it much worse than I do. My kidney functions seem to be fine at this point, I am sorry you are going through this,...
Our symptoms are very much alike, I started with what I and my NP thought was a sinus infection, a round of Zithromax seemed to help for the first couple of days, but I knew it was more than just...
I contacted my rheumatoidologist today with similar symptoms, her nurse told me to see my PCP, really? SMH
What was the breaking point that they approved him? I still have to make appointment with disability person, just don’t know if I can swing it financially. Sherry
Marsha, Thank you so much for this information!! I will definitely look into it, Sherry
Being new to this will take time to figure out what my body is telling me, thanks for your input, Sherry
I am not comfortable with changing my doses yet, staying on 15 until I see the Dr. again but I have seen here on this site that many people do this, just don’t trust myself yet to play with the...
Thank you!
Thank you so much for your post, I am trying
here, just trying to grasp all of this. I am so blessed to find this site.
I did check into disability at work, they only provide 60%, not enough sadly. Sherry
Thanks Pete, for some reason I thought I was taking it for my kidneys, good to know I am somewhat protected, especially with the people I come into contact with at work. Sherry
I am also on Bactrim X3 weekly, but only 3 times a week how does this deter bacteria?
The rheumatoidologist specializes in GPA, I really don’t think I am in remission either, don’t feel like myself at all, which is frustrating as I was always active. I was on sick leave for 2 months...