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    The one of the Left was taken Dec 2013 the far...

    The one of the Left was taken Dec 2013 the far right, taken October 2014.
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    Well, I am attempting to lose weight as well. I...

    Well, I am attempting to lose weight as well. I am down between 25-30lbs and still need to lose more. ITs all about diet and exercising. Prednisone is one tough cookie, but we have to be even...
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    Hi All, I've been hesitant to put this out...

    Hi All,

    I've been hesitant to put this out there because heck, you just never know but….LORD WILLING, I will be completing a 1/2 marathon challenge next month. My plan is to wear a T-shirt to...
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    This week I started back on the treadmill. Did...

    This week I started back on the treadmill. Did about 3 miles yesterday along with some strength training. I'm hoping to get outdoors over the weekend for some exercise. I'm thinking of buying...
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    Aww, feel better Pete! I am thinking of taking...

    Aww, feel better Pete! I am thinking of taking this week a little easy myself. I've been working out now for almost 20 weeks straight and you have to add some recovery time in there. I think If I...
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    Hey Pete and my fellow. Workout buddies! I am...

    Hey Pete and my fellow. Workout buddies! I am finally hitting the pavement with my long runs again. And it feels great!

    I am doing paleo\atkinish diet to lose weight along with strength n...
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    Congratulations!!

    Congratulations!!
  8. Great Idea!! Thanks for sharing!

    Great Idea!! Thanks for sharing!
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    That's great news!!!! We are on the same taper...

    That's great news!!!! We are on the same taper schedule and I go back to CCF in Janurary. I pray I have the same results as you!

    Butwhat a great way to spend these cold winter...
  10. Thread: Checking In

    by Sjap0655
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    HI Bob, I'm one of the new ones but I'm in...

    HI Bob,

    I'm one of the new ones but I'm in OHIO! Just wanted to say I'm glad your doing well and look forward to meeting you at the next Ohio group!
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    How has Wegeners effected you?

    I am not sure if this is a duplicate thread idea or not, but my idea was to have a thread that tracks what organs or WG affected areas most people have experienced since diagnosis. I see alot of...
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    I will have to agree with Pete. Right before I...

    I will have to agree with Pete. Right before I found out I was having a flare up; my eyes started feeling "funny" , I experienced eye pain when rolling my eye's left to right and the whites of my...
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    Anne. That soup sounds delicious!!!!

    Anne. That soup sounds delicious!!!!
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    Hi Pete, I 'd say the diet is coming along good....

    Hi Pete, I 'd say the diet is coming along good. You would be surprised at all the resources on the internet and different cook books to make going Paleo very easy. The hardest part is breaking...
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    Hi guys, So I called my doctor today and we...

    Hi guys,

    So I called my doctor today and we discussed my results. He said that the number I was give was for the high sensitivity CRP or (cardio) so not to worry about this number. I had to...
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    Elevated CRP normal Sed Rate...

    Hey Everyone...

    I was just curious as to whether anyone has had this combination(elevated or high CRP with Normal Sed Rate) after getting blood work results.

    On Saturday I went and had blood...
  17. Thread: Supplements

    by Sjap0655
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    I use acidophilus at night, take a calcium,...

    I use acidophilus at night, take a calcium, magnesium and vitamin D pill (3 times daily), fish oil and folic acid.
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    I will check it out Marta. I too started...

    I will check it out Marta. I too started blogging or a online diary about my Wegener's adventure. You can find it at My Fitness Journey

    It talks about diet, exercise and the prednisone...
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    Well, I haven't read the book but I can relate to...

    Well, I haven't read the book but I can relate to the side affects from 60 mg of prednisone. I am experiencing moon face, buffalo hump and sleepless nights. I would also dare to say mood swings but...
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    I had a great time!:thumbsup: Looking forward to...

    I had a great time!:thumbsup: Looking forward to our next meet up!:thumbsup::thumbup::biggrin1:
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    Hello! The only insight I can give is to have...

    Hello!

    The only insight I can give is to have them biopsy the kidney. With WG's, blood work can come back normal however you can still have necrosis going on in areas. In my case, somewhat...
  22. I love this thread!!!! Today was rough for me...

    I love this thread!!!! Today was rough for me emotionally. September 16, 2013 I went back to 60 mg prednisone after being on 5 mg and having lost 17 lbs. Today I looked at the scale after having...
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    Hi I'm fairly new to this group however I have...

    Hi I'm fairly new to this group however I have had two infusions for Rutixmab to reduce kidney "flair" or involvement associated with WG's. I was blessed in that, my creatine function and kidney...
  24. Aweaustin _Thanks for your response. Thank...

    Aweaustin _Thanks for your response. Thank goodness, I do have a nephrologist and a Rheumy that I see up at Cleveland Clinic. I'm in a sort of weird situation with my kidney involvement as it...
  25. I have a question, if you are treated with rTX,...

    I have a question, if you are treated with rTX, does your doctor have you do urine dipstick test at home? My doctor told me to do them to monitor protein and blood in the urine. My question, is how...
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