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I have just tapered off Pred but still on 15mg MTX per week and its the pred not the MTX that causes loose teeth is it ( I have googled for hours) -I have 2 loose teeth but stalling any extraction...

Hi All.
I am taking 15mg MTX per week and have 2 loose teeth (prob caused by MTX) my dentist is scared to remove then whilst on MTX the consultant at the clinic says to stay on MTX and have the...

Hi. Is there anybody out there that has stopped pred for 4-5 months (after every day for 2.5 years) with no flare apparent and is still on MTX at15mg per week and what are they going to do re getting...

Hi All. I have not been on for a few months trying to forget GPA :rolleyes1:
I tapered down and off Pred 4 months ago with no signs of inflammation. I am now only taking MTX at 15mg once a week with...

Thank you Karen that is very encouraging keep it up all best Stephen

Sorry this plan was decided by the Consultant Rheumatologist and myself yesterday morning, after 6 months of blood tests at less than <3 CRP and I suppose 2.5mg every 2 days is the same as 1 and a...

It is decided 1 month at 5mg --1 month at 2.5mg--1 month at 2.5 every 2 days then STOPI will keep reporting on taper

Hi I am down to 7.5 mg Pred going to 5mg for a month, is that the lowest or can you go to 2.5mg then stop?
(does anybody stop, have any of you stopped Pred? for ever!!!)

Have you seen the side effects of Protelos 2g granules sachets
Common: More than 1 in 100 people who take Protelos

abnormal laboratory test results

altered level of consciousness

...

I got results of A DXA (short for dual-energy X-ray absorptiometry) scan today from my GPA medics confirming borderline Osteoporosis caused as a side effect of Pred --- can you imagine the shock---...

http://www.wegeners-granulomatosis.com/forum/avatars/stephwest.gif?dateline=1384872791


Hi all I posted this in Meds but got no feedback does nobody care about drug...

Hi All
Has anybody found a lactose and corn/grain free pred as I have just discovered the deltacortril enteric I take has loads of other ingredients.
Why do drug companies add the most common...

Hi Pete many thanks we call the sed rate ESR in Ireland and the normal range is 5-19 mm/hr
The CRP is measured in mm/1st hour5 ( don't know what the "5" is could be typo) was 4-12mm now altered to...

Thanks Phil
What are you current CRP and ESR and what MTX and PRED are you on now?
All b
Steph

Hi Pete
What is that level in mm/1st hour5 (whatever that means)
All best
Stephen

Hi Phil
What is to high to report ? was that now or 2003?
Is your CRP based on mm/1st hour5 (whatever that means)
Mine is 9 mm/1st hour5 and ESR is 13 mm/hr (whatever that means)
Can you...

Hi Deb
The last CRP was 9
Thanks
Stephen

Hi went to new Dr today with latest blood test results the CRP (inflammation) used to be 4-12mm normal but he told me the new normal is <3 (3 or less) and has set pred at 20mg per day and MTX at 25mg...

If nothing else, having Wegeners has been a very educational experience, in so many ways.
(I've never broken a bone, never had surgery for an injury, and now this happens)[/QUOTE]

Hi Pierre How...

Hi.
I have GPA 8 months and after 6 weeks got bad lower back muscle/tendon pain, physio found 2 bulging discs in lower back and torn muscles with physio work and lots of rest slowly got better. Then...

I was diag in July 2013 and have just come across ANCA antibody test for that time, with a titre of 320 and anti-PR3 ELISA of 356, said to represent a 90% of people with GPA/WG, how do these numbers...

I was diag in July 2013 and have just come across ANCA antibody test for that time, with a titre of 320 and anti-PR3 ELISA of 356, said to represent a 90% of people with GPA/WG, how do these numbers...

Hi Gilders. Sorry looked at the 5mg in artificial light and looked brownish but in comparison to 2.5mg they are reddish (they should have made them blue and yellow) what mg of pred are you on now and...

Can anybody that has had and ANCA test describe in detail what is done to you e.g. is it a simple taking of blood / how long is test / how long for results / what numbers confirm GPA /
Many thanks...

Hi Stephen here again.
My pharmacy told me when last filling script that they cant get the same make of PRED but another generic maker would be exactly the same.
The original tabs are 5mg small...