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Type: Posts; User: lily_0303

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    Sticky: Re: How to know when you're having a flare

    Hey Summer,

    An easy sign for me that I am having a flare is it becomes difficult to use my hand or my my foot (around the wrist or ankle) sometimes it’s one or the other and some times it’s both....
  2. Re: Melatonin supplementation is possibly like feeding Wegener's a candy bar.

    I do hope you are feeling better, I was taking melatonin before being prescribed ambien, sorry if I spelled that wrong. Alternate between that and gabapentine for the pain in my hips to help me...
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    Re: Been a minute

    Thank you all for the awesome suggestions! Alan1107 I write as well and I do also preferr the traditional pencil and paper. I dont like to use pen unless its erasable lol just because I might go back...
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    Been a minute

    It has been a minute since I have posted on here, but I wanted to reach out and see what everyone does to keep going. I have my family as my motivation but some days it's, just really hard. Also...
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    Re: Does any one else have days like this?

    Thank you Pete, I have managed to stop crying, thankfully. I do think you're right, think it is just everything hitting all at once because I gave myself time to grieve for my grandma last year but...
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    Does any one else have days like this?

    So today I have not been able to stop crying. Husband is at work and daughter is at school. I work from home. A couple weeks ago I lost my grandpa, and the year before I lost my grandma. I was close...
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    Re: Been a minute

    That's good you're doing well, yeah I think there are allot more support groups on Facebook. My husband is in one for families of GWP patients. I'm so glad there is one for him, know it's hard...
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    Been a minute

    Been a hot minute since I've been here, lost my original account. Hope everyone has been well and is doing well. Got my tubes remove so rheumie and I don't have to worry about pregnancy! Been doing...
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