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    The good lord didn't waste any time. I was at...

    The good lord didn't waste any time. I was at the hospital with her in her hospice room. Laying on the couch the nurse tapped my shoulder and told me she was gone at 2:07. She was given her...
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    Last night we had a hospice consult. Mom was not...

    Last night we had a hospice consult. Mom was not doing well. Today I had a Rheumy appointment on the ride home I was told she is waiting on me to sign dnr. It wasn't a dnr... Mom is now in...
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    So my head is in a whirlwind right now. Just...

    So my head is in a whirlwind right now. Just throwing out what I know. This may or may not be hard to follow. She may be moving today if not tomorrow after dialysis to a extended care facility. ...
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    Just a update. She is still alive and kicking...

    Just a update. She is still alive and kicking but still in the hospital. The insurance company wont pay for a move out. The reasoning is she has certain needs that her coverage will only pay for...
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    Sorry I haven't posted in a few days. I have been...

    Sorry I haven't posted in a few days. I have been very busy and worn out as you may have guessed. She is still choosing to fight which means she is still in the hospital right now. She dose have...
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    Got horrible news today... Cancer biopsies are...

    Got horrible news today... Cancer biopsies are all in. The reason for the hard diagnosis of primary cancer is she is a rare case. 3 primary... doctor had presenter her case to a tumor board...
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    Thank you all. Mom got the chest tube out today....

    Thank you all. Mom got the chest tube out today. She hasn't had any drainage in 3 or 4 days. That is good from the comfort level for her. She is still in the hospital and still has the tubes in...
  8. Thread: Good news

    by chris.wg
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    Well another bit of good news. The local...

    Well another bit of good news. The local pulmonologist that I see said today. You have had no other issues since the initial flare and have got a lot of doctors looking after you. You shouldn't...
  9. Thread: Good news

    by chris.wg
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    I too had been considering that Alysia. I will...

    I too had been considering that Alysia. I will mention it when I see my Rheumy. That is a little over a month away unless I have a flare between then and now though.
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    Well the oncologist confirmed finally it is...

    Well the oncologist confirmed finally it is cancer. But he contacted the U of M <same place I go for treatment> They said treatment is possible without kidneys explained the process. We first...
  11. Thread: Good news

    by chris.wg
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    Good news

    If you been following my other thread you know any good news no matter how small I need to take as a victory right now. Amongst my other problems I went to see my ENT yesterday. He said from the...
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    Only similar to she has now. We will not make...

    Only similar to she has now. We will not make her a category 3 unless she wants it. She has made that clear thru her life to me. But as far as recessitation her answer has always kind of been the...
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    Update. She is more lucid so the may be able to...

    Update. She is more lucid so the may be able to participate herself in our decisions. That gives me some peace. Yesterday she actually started producing urine. unfortunately this was just false...
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    She is 64 Debra. Unfortunately my hope ended...

    She is 64 Debra. Unfortunately my hope ended today. Tomorrow my sister and I have to decide if we stop dialysis and make her comfortable with hospice care. Or if we keep her alive in a hospital...
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    It is not looking very promising right now but...

    It is not looking very promising right now but there are glimmers of hope here and there. I try to focus on those glimmers but the very real possibility is she may not come home. I appreciate every...
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    I could use some prayers.

    My mother went into the hospital last night and it doesn't look good. They have a plan and are doing everything they can for her. But I was already given the you better contact anyone speech. ...
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    Happy Birthday michelle

    Happy Birthday michelle
  18. Thread: Thank you

    by chris.wg
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    Thank you

    Three years ago this week I was admitted to the hospital with what appeared to be sinusitis, a ruptured ear drum and pneumonia in both lungs with a abscess in my left. Two and a half weeks later I...
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    People concerned with awaremess.

    I Just posted the following on my facebook page as well as the facebook group for others to use. I am aware it doesn't say it all but this is a start. I hope many others will post this or something...
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    Last post about the girls was this summer they...

    Last post about the girls was this summer they come up here in the summer I go down there in the winter for a week. But yes they are great. Thank you all for the advice about the nose. I did see...
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    Uncle jungle gym

    Was just in GA for a week visiting my sister and nieces. Hope to get caught back up on the thread though that may be impossible with the activity :P > I will try. My week was great and as the...
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    My belief is most of the water as you say is...

    My belief is most of the water as you say is "probably safe". But odds are also that you are not likely to get WG. So I just wont take the risk a bottle of distilled water is a $1 a gallon and...
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    I am on Rituxan and I have used Cytoxan. From...

    I am on Rituxan and I have used Cytoxan. From what I have seen both are used to induce remission. Rituxan is a infusion but less harmful then Cytoxan as far as all research has currently shown. ...
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    Thank you annekat it was some time ago back in 89...

    Thank you annekat it was some time ago back in 89 and it was actually my stepfather. But it wasn't ment to be the rant it went into that was just the best example I could give being I lived with...
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    Hi Piggybutt welcome to the forum. Your symptoms...

    Hi Piggybutt welcome to the forum. Your symptoms are common. I got off my Cytoxan the past June I think it was though I never got down to 100 the lowest I ever made it was 125 and started at 200. ...
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