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Hi Everybody
Hopefully everbody is doing well the best they can.
I am doing oke:biggrin1: so far might need dialysis in future not sure of that yet
Next week going to visit my Mom in Holland...

was on cellcept to for over a year myself i never had these problems. but u should get it checked out.
I am now off of cellcept for about 1 month so far so good
I wish you goodluck and keep us...

no i think he is taking me slowly of the cellcept

i am on 7 mg prednison for awhile now and haven't had this problem before yet at least not as bad.
also on 500mg cellcept
I do think alot about what if it comes back it has been in remission for...

cann't fall asleep at all because mind is racing

Hi everybody,
I ques i can say that my weg's is in stable condition at the moment:biggrin1:
but i have a lot of sleeping problems lately:sad:
anyone have any suggestions

thanks jenny t

Went to Doc last Thursday everything seems to be stable
My white cells are a little low so i am currently off the cyclo and down to 8 mg pred. I have been feeling pretty good after being off the...

thank you Jack
i have been very depressed lately and this eye thing does not help at all.
how long did you have to wait for this operation where you still on prednison?
Jenny

sorry haven't been on for a while.
good news is that my blood is stabel and have been cut down to 10 mg preds.
bad news is I have now cataracts en glaucoma
will see the eye doctor on Wednesday.

Saw my doctor today. he is going to cut me back on predison 10 mg a week
until i am to 10 mg. then he's switching the cyclo to a other med.
i am kind of in remission but not out of the woods yet.
...

For the last couple of days i have noticed spots in my left eye just if there is a hair in that i can not get out.
anyone else has this before? I see my reumy tomorrow(15th)

Jeeny T

great news congrats.

me too and the cyclo too

hey Andrew
Better now, just not enough patience I quess.
Today they found spots on my liver have to go for a mri.
he said nothing to worry about. w'll see about that one

Jenny T

Hi Ami
Welcome to the club of weggies. Hope everything goes well for you
JennyT

Hi
I am sure someone has experience this before wonder if you could tell me what's going on
It usually disappears after one or two hours and its mostly after I had my sleep
Had my bone marrow done...

i've been taking off cytocan for a while because off white cell count. Then when it went up i am back on it but a lower dose.
For myself i can't say the weakness or appetite part. My weakness had a...

Thank you for all your support. I will be going next week wednesday May 6th for the bone marrow test not looking forward to it but needs to be done.
I'll keep you posted.

Jenny T

Hi
I went to the hematologist today and there are a lot of tests coming up:(
One of them is a bonemarrow:D hopefully they find out why the hemo is dropping maybe its the meds i am taking
...

Hi everybody

I had my transfusions this past thursday and friday i am still tired , sleep alot
how long will it take to work?

Hi everybody,

This past thursday and friday I had 3 units of blood:( I am still very tired
and a big bruise on my arm:D How long does it take to work and i won't be so tired?

Jenny T

Hi everybody
Haven't been on for a little bit. I need blood transfusions:( My hemo
is way to low. haven't been doing to well the last week.
(I quess like everybody else in the same boat)
It...

Hi everybody,
Is any of you on aranesp. any side affects?

Hi
Does anybody has experience with the med aranesp It is to get your red cell counts up. my hemo is very low.
I am back on cytocan 75 mg this time and of course my prednisone 40mg.:confused:
how...

Hi Cindy
You're right I have the same thing to much stress really puts me down and i have one of those feel sorry for myself days. But its easier said then done.
Hope to hear from you
Jenny T