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Type: Posts; User: Meredith

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  1. Re: New Doc - New Procedure for Subglottic Stenosis

    I wish there was a way to find out the percentage of people who had this done and if it was successful.
  2. New Doc - New Procedure for Subglottic Stenosis

    Have had 3 surgeries for this - they all turned out great. My doctor retired and suggested I see a new doctor (same clinic). Saw him last week - everything looks good when he scoped me but he...
  3. Re: Dr. Appt. - Vaccine did not work (no antibodies) Follow-Up

    After 3 Covid vaccines, 2 Phitzer and 1 Moderna (all showed no antibodies in my body). Caught Covid in January (in the hospital for a week). I have now been off my Rituxan treatment for 2 years. ...
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    lumps on back of leg and one on foot

    Good afternoon - I have 3 lumps on the back of one of my legs. One on top of my foot. Went to the Ortho doc. and nothing showed up on the x-ray. Went to reg. doc. and she had me checked for blood...
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    Re: Evusheld

    I had Evusheld in April - tested for the antibodies in June and I had them. I am in remission with Wegeners right now, have been for 2 years so no Rituxan right now. I have CLL now also to deal...
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    Re: Covid vaccins and WG

    Had Rituxan approx. 8 months ago - had the pfizer vaccine. Doctor checked for antibodies, none. Had me wait 2 months (I was 2 months late getting my rituxan treatment) had the Moderna vaccine. Had...
  7. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    Ok -next steps. No Rituxan for 2 months (which puts me 8 months out from the last two). Try again with vaccine in August, only pfizer or moderna. I just pray I don't have a flare!
  8. Dr. Appt. - Vaccine did not work (no antibodies)

    Went to the Doctor last week told if you are on Rituximab good chance the vaccine did not produce the (antibodies). they took multiple blood samples and I got the results yesterday. My doctor is in...
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    Re: Covid vaccins and WG

    My doctor sent me an email - said I should have the vaccine 4 months after my last Rituxan infusion. Last RX infusion was Dec. 18th. I will be getting the vaccine in April now instead of March. ...
  10. Thread: Nose Bleeds

    by Meredith
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    Nose Bleeds

    Have had a few nose bleeds, 2 in the last 2 days. Does anyone else have issues with this? Wonder if it is the dry weather? Have had Wegs for approx. 14 years and haven't had issues with bleeding...
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    Re: Infections from mosquito bites

    the last few years every time I am bit they look horrible and are huge - I have to wear bug spray whenever I go out. They will actually bite me on my face. Never had this problem before. At the...
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    Wegeners and now CLL

    I have had Wegener's for approx. 13 years. Have been on all meds to control with the best results on Rituxan and Pred. the Rituxan kept the CLL (Chronic Leukemia under control (have had for 3...
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    Re: Rituxan for airway involvment

    Since being on Rituxan I have not had to have my windpipe stretched (3 to 4 times I had to have it done). I do have mucus/coughing in the mornings - usually I am able to take care of it within an...
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    Not feeling well - flare?

    It has been a long 2 months - first started as a sinus infection late November. Took meds. Then I came down with the stomach bug Dec. 23rd. Really sick with it. After Christmas I came down with a...
  15. My ENT has done the SGS procedure on me 3 times -...

    My ENT has done the SGS procedure on me 3 times - in the hospital as an out-patient. I went from not being able to breath normal to no problems. Since I have been on Rituxan I have not any problems...
  16. My specialist said no live vaccines. I am on 5mg...

    My specialist said no live vaccines. I am on 5mg predisone and Rituxan every 6 months (2). When I went to India for work I only got vaccines which did not have "LIVE" viruses. I did get shingles 2...
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    Just got back from the CLL doctor today - white...

    Just got back from the CLL doctor today - white count is up to 21,000. He did not seem to concerned. Will monitor me with some new blood tests (guess they can look at the cells and do some...
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    Wegeners and CLL - just scared today

    I have had Weg's for approx. 9 years now. Been on multiple medications. RTX off and on for 3 years. This year they diagnosed me with CLL (chronic leukemia). Now I have to deal with that. They...
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    Exercising - prednisone

    Just joined the YMCA and will attend my first swimming class today. Walked and rode a bike on Wed. Tired of the weight gain over the past 9 years since I was diagnosed with WG. Will see how I do. ...
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    Breathing - can be scary. Just went to my ENT he...

    Breathing - can be scary. Just went to my ENT he said things look pretty good, some scaring still showing. I have a close relationship with him because of all my problems even hugged me on Friday. ...
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    Had to have my windpipe stretched 3 times - since...

    Had to have my windpipe stretched 3 times - since being on rituxin it has taken care of the probelm. Still see my ENT but for 3 years now everything has been fine.
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    I had a Tetanus before going to India 2 years...

    I had a Tetanus before going to India 2 years ago - no problem.
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    I have had Weg. for about 8-9 years now - was...

    I have had Weg. for about 8-9 years now - was just diagnosed with CLL - they think I have had it for a long time. The Rituxan treats not only Weg. but CLL also. Besides feeling tired I really...
  24. Rituxan - already had 4 infusions now I have swelling in my feet and one leg

    Just finished my Rituxan infusions (4) a couple of weeks ago. 3 days ago my feet and left knee became swollen. I am coming down off pred's. now on 10mg. Anyone else have this issue. I have been...
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    I had the flu - my throat (I HAVE THROAT PROBLEMS...

    I had the flu - my throat (I HAVE THROAT PROBLEMS HAS TO BE STRECHTED) started closing up and I knew I was in trouble so went straight to the ER. Showed up in an x-ray that I had pneumonia in my...
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