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    It is horrible when ur teeth starting falling...

    It is horrible when ur teeth starting falling apart. I have had asthma since I was a kid. So a double whammy for me. The last time one of mine went I was out for lunch and my tooth (in the front)...
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    Jules, I needed a laugh. How true re: Botox. I...

    Jules,
    I needed a laugh. How true re: Botox. I just came back from dr today, I have whooping cough, feeling sick as, called into see my mum & dad and all they could say is how fat I am now. Not...
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    Hi drz My GP told me it's the prednisone. It...

    Hi drz
    My GP told me it's the prednisone. It tends to weaken them, I have just finished getting mine fixed. Pretty much all mine needed fillings. Oh what fun, especially with a restricted jaw lol I...
  4. hi Moira, i am down the hill from u, in ipswich....

    hi Moira,
    i am down the hill from u, in ipswich. I bet it is much cooler for u today than me. We have a lovely hot wind, with a temp of 40. For those of u that are experiecing winter weather, that...
  5. Hi Steve, I tried to pvt msg u back, but u have...

    Hi Steve,
    I tried to pvt msg u back, but u have blocked the msging i think. Sorry that u had to join our exclusive little club, but so glad that u have found this forum. It really helps, to find...
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    Natalie, do not have a heart attack, yes it is...

    Natalie, do not have a heart attack, yes it is me, so that is what you have been up to! It is amazing what our bodies hang on to hey. Have you heard from a man called 'steve' on here? He is in...
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    hi everyone no autoimmune diseases in mine...

    hi everyone
    no autoimmune diseases in mine either
    although we do have policystic kidneys and liver. v. prevalent on my dads side, 7/10. With more than our fair share on dialisis (my dad starts...
  8. Thread: Lessons Learned

    by sharon
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    Yay!!!! thumbs up, 5 stars, maybe even some light...

    Yay!!!! thumbs up, 5 stars, maybe even some light at the end of the tunnel.
    I am sending lots of hugs your way. What great news that you are making some headway. Every step forward is a reason...
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    Col 23 glad i could help, i think our bodies find...

    Col 23 glad i could help, i think our bodies find it really hard to get into any "normal" sleep routine, the fatigue and pred (sorry i can't remember if you are on it) play havoc. I try to ration...
  10. Hello Hayley, welcome to our little community,...

    Hello Hayley,
    welcome to our little community, sorry to hear you were diagnosed so young, but it is great to hear you are so well at the moment, living life to the full, working and going to school,...
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    Hi Col 23, i gave my treadmill away, it was too...

    Hi Col 23,
    i gave my treadmill away, it was too depressing watching it gather the dust, I keep telling myself i will walk tomorrow, i may just actually do it one day and shock myself, and the dr....
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    Cathie, i had no major stresses before my...

    Cathie,
    i had no major stresses before my diagnosis, 35, happily married, with 3 kids (9,11, 14) & i was the fittest and healthiest i had ever been, lost those extra kilo's, all was good in my...
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    Good morning cathiie, yes, i remember it well,...

    Good morning cathiie,
    yes, i remember it well, or rather my family would love to forget the high doses of prednisone. I was not easy to live with, like u i am usuallly easy going, but on the high...
  14. Thread: janene

    by sharon
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    hello Janene, I have had wegs for 3 yrs and no...

    hello Janene,
    I have had wegs for 3 yrs and no sign of remission yet for me, but your dr is right, each one of us is different in terms of remission timelines. It was a very good idea to take some...
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    Sangye, just when we think we are getting close...

    Sangye, just when we think we are getting close to working out WG, it changes tack, and bites us hard on the rear end (or bum as we call it down here). I hope you are feeling a bit better tonight,...
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    Just don't stay out in the cold too long . . ....

    Just don't stay out in the cold too long . . . LOL
    Maybe you could revisit the 80's and put some of the old tights and leg warmers just to spice things up!! just make sure it co-ordinates with the...
  17. Thread: a weggies poem

    by sharon
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    thanks ian, **** 4 stars for you!!

    thanks ian, **** 4 stars for you!!
  18. Thread: janene

    by sharon
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    Welcome Janene, So glad you found us, i am up...

    Welcome Janene,
    So glad you found us, i am up here in sunny Qld, there are a few of us around the traps, what hosp is treating you?
    Like the others said we all have varying degrees of the side...
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    Good afternoon Col23, I get pretty tired,...

    Good afternoon Col23,
    I get pretty tired, especially in summer, at the moment my asthma is playing up, but generally fatigue is my biggest problem, but it is such a nice part of the world, beaches...
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    Hi elephant, i am on 5mg prednisone and DS 400...

    Hi elephant,
    i am on 5mg prednisone and DS 400 Symbicort inhalers 2 puffs upto 4 X a times a day. To control the WG i take 2.5gm of cellcept (mycophenalate) daily and bactrim twice a week. I was...
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    Good afternoon Sangye, i am off to the sunshine...

    Good afternoon Sangye,
    i am off to the sunshine coast tomorrow for a conference and break, i will be looking for alternatives to my coffee & choc regime. It makes so much sense. Once again thanks...
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    Hello Ian, sharon here from the colonies down...

    Hello Ian,
    sharon here from the colonies down under (OZ), u R killing me, i have this vision of you in a kilt, in a boxing ring takeing on WG (complete with the rocky theme playing in the...
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    Hello elephant, i have had a lot of problems...

    Hello elephant,
    i have had a lot of problems with my asthma and lungs lately, my dr keeps telling to exercise and lose weight, (she suggested i swim, good luck with that i have fibroids through...
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    welcome JudyJ, great to have you on board, so...

    welcome JudyJ,
    great to have you on board, so glad you found us. I have found this site very helpful, the more information u have, the more informed choices you can make, you are your own best...
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    Hello Deanne, I am so glad u found us. I am on...

    Hello Deanne,
    I am so glad u found us. I am on the east coast, not too far away from Natalie. I have found it so good talking to people who are in the same boat, just getting stuff out my head...
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