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Type: Posts; User: drz

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  1. Re: How was my Health before coming down with GPA Vascular

    Some people with GPA have done amazing physical feats, much more difficult than usual marathon, so recovery and future activity is very varied. It depends a lot upon the extent of the damage to the...
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    Re: Coronavirus and GPA

    MARCH 29, 2021
    Rituximab therapy linked to more severe COVID-19 in patients with inflammatory rheumatic and musculoskeletal diseases: Study
    Rituximab therapy was associated with more severe...
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    Autoimmune Disease Awareness Month

    Not sure how this impacts us as I heard little about it so far!
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    Rare side effect of Covid-19

    I found it interesting that Covid-19 and GPA seem to cause some of same damages and problems.


    Tinnitus and COVID-19 connection explained by experts
    ...
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    Re: New Here - Possible GPA with Nasal involvement

    The pandemic has impacted healthcare almost everywhere. I remember last year when in my area of rural Minnesota only emergency care was being offered for a while since all the hospitals and clinics...
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    Re: Ongoing Sinus Issues

    I was told that my residual symptoms of GPA will fluctuate from time to time. But they could also evolve or change into something new that I had not experienced before. Initially my most typical...
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    Re: Covid vaccins and WG

    We know the vaccines are not 100% effective so how many people become infected after getting both doses. Did any of them get seriously ill so as to require hospital care? Any deaths?

    My doctors...
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    Re: New Here - Possible GPA with Nasal involvement

    I think you might want to check it out with a sleep disorder specialist since many times doctors do make mistakes. Years ago I was told by a highly recommended internists that I did not have...
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    Re: New Here - Possible GPA with Nasal involvement

    If you think your sleep is being affected, you might consider doing a sleep disorder test that might shed some light on what is going on in your body.
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    Re: New Here - Possible GPA with Nasal involvement

    My first hearing loss began in childhood when a very bad Dentist blew out my eardrum by injecting Novocain into my eustachian tube. I went swimming with the perforated eardrum and got a serious ear...
  11. Thread: Wegners in ears

    by drz
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    Re: Wegners in ears

    It helped me by masking the tinnitus with other normal sounds. i was told that much of my tinnitus was the result of the brain creating some stimulation because of the loss of outside normal sound....
  12. Thread: Wegners in ears

    by drz
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    Re: Wegners in ears

    I use a BAHA on side that lost hearing and balance mechanism and a BTE model on other side that has some hearing but no middle ear mechanism. I have a long history of ear and sinus problems long...
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    Re: New Here - Possible GPA with Nasal involvement

    GPA can cause a variety of symptoms and can be very difficult to diagnose. It is important that you persist in your efforts to get an accurate diagnosis and treatment for whatever is creating your...
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    Re: Coronavirus and GPA

    I had an reaction to my second injection which felt like my allergic reactions to sulfa and Z -packs antibiotics. My throat started to tighten up so I went to ER and they gave me 40 units of...
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    Re: Possible GPA flareup in the ear

    I lost my hearing and balance from GPA. It happened overnight. I had a long history of ear problems with several surgeries before the GPA attacks which could have been a precursor to having a serious...
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    Re: Coronavirus and GPA

    Ten hours later I have a mild headache and more fatigue but I think this a good sign since it means my suppressed immune system is reacting to the vaccination which increases my chances of getting...
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    Re: Coronavirus and GPA

    I got my second vaccination today but had a bit of an allergic reaction so I had to go to the emergency room where they gave me a steroid shot in addition to the two Benadryl and Tylenol I took...
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    Re: Coronavirus and GPA

    Having a compromised immune system makes the efficacy of the Covid-19 vaccination a guessing game. My infection specialist estimates we might have less protection than the 90-95% rate they found in...
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    Re: Covid vaccins and WG

    The rollout of vaccines varies greatly by state and location due to shortage of vaccine. I will get my second shot in 11 days as I am on three high priority lists but my dental staff and optometrist...
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    Re: Rhinoplasty and Insurance

    Such decisions can be appealed but success depends upon how good the insurance company is and what documentation the surgeon and treating doctors provide. If they claim the operation is "medically...
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    Re: My cough, its so bad!

    I had GERD for years before my GPA and the meds to treat my GPA accentuated the GERD problem. The GPA also damage my sinuses which increase the problem of postnasal drip. I went through the usual...
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    Re: Covid vaccins and WG

    I take AZA daily and was told not to make any changes in my meds and I got the first vaccination yesterday.
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    research so far indicates vaccine is safe

    Lot of technical terms but gist of it is that vaccine is safe.

    January 14, 2021




    Interim analysis of early trial shows COVID-19 vaccine Ad26.COV2.S safe and...
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    Re: New old guy on the block

    My experience is that tapering the pred meds when you get under 10 mg is a real challenge. It does not seem like a 1/2 mg or 1 should be that big of a change after I dropped by 5 or 10 when I went...
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    Re: Coronavirus and GPA

    That is not one of the typical side effects. Has any one asked you about side effects?
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