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  1. Replies
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    Alysia, Thank you for this post as I also live...

    Alysia,
    Thank you for this post as I also live alone and pray each day for the few friends and family that care enough to check on me from time to time but I have a friend on here named Deb that has...
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    51
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    7,698

    Hey Deb, I am trying to feel better as I get on...

    Hey Deb,
    I am trying to feel better as I get on here and see how screwed everyone else is and that really helps me feel a little better. LOL !! HA !
    As a tear rolls down my face from pain from...
  3. Replies
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    4,840

    In the USA we call this saddle nose and most...

    In the USA we call this saddle nose and most people don't even notice the change in their nose on the bridge until its quite prevalent and needs reconstruction. I have a very slight saddle nose at...
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    7,698

    I can't freakin believe this. Here I am suffering...

    I can't freakin believe this. Here I am suffering for years with no remission in sight and this dog gets more relief than me. All I can say is God works in mysterious ways. LOL ! A doggone miracle it...
  5. hey Deb, I had to exit for a few minutes. I am...

    hey Deb,
    I had to exit for a few minutes. I am not feeling so well. I hope you all understood my post . I don't like to ramble on but I have spent so much time researching why I feel so sick every...
  6. I have read several reports on this subject and...

    I have read several reports on this subject and asked my Rheumy about it several times and what I understand is that the titers test is the standard and any measure of positive will be an active...
  7. Drz, I have had major sinus problems my whole...

    Drz,
    I have had major sinus problems my whole life. I have come up with a system that works for me. I shower every day and rinse my nose after the shower almost every other day with a netti pot of...
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    Hey Greg, I have recently made the opposite...

    Hey Greg,
    I have recently made the opposite decision to stop dating as my disease is recently diagnosed and my situation is not looking so well but I am trying to remain positive. I can tell as I...
  9. Hey max, Thanks for the reply. I have been...

    Hey max,
    Thanks for the reply. I have been confirmed as active with ANCA blood test (C,P,PR3) and several other condition issues are very active like joint swelling severe pain and so on. I did some...
  10. Thank you Deb, I am always grateful for anyone I...

    Thank you Deb,
    I am always grateful for anyone I can call a friend.
    God bless,
    James
  11. I appreciate the compliment Gary , I guess? LOL...

    I appreciate the compliment Gary , I guess?
    LOL !

    Take care
    James
  12. Thank you Tom, Sounds like you have done your...

    Thank you Tom,
    Sounds like you have done your homework .I guess we all go searching for info as we need it daily.
    Be blessed,
    James
  13. Thanks Alysia, You are right about the anxiety...

    Thanks Alysia,
    You are right about the anxiety as I have been so inactive and a semi hermit for about two years. I am on chemo treatment for active Wg's(Humira and MTX) but I think this steroid...
  14. Methylprednisolone and Prednisone Withdrawal ?

    Greetings all ,
    I have stopped taking steroids for the first time in two years after several reductions and finally a taper down to zero.
    My symptoms on a regular basis are a very long list and my...
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    Hey Kymberly, I hope your visit with the Dr went...

    Hey Kymberly,
    I hope your visit with the Dr went well. You should expect to have a series of blood test and xrays then some form of steroid medication and then you will select an immune suppressant...
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    Middlesista, Your symptoms of presentation are...

    Middlesista,
    Your symptoms of presentation are very similar to mine except for the lung issue that I have not experienced. My eye DR was on the ball and knew it was autoimmune Uveiitis and saved my...
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    I have these same pains along with many others...

    I have these same pains along with many others quite frequently. I asked the DR's about this and two of them seem to think/guess that its from extended steroid (Prednisone/Methylprednisolone) use....
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    vdub, Thanks for the kind words of hope. I...

    vdub,
    Thanks for the kind words of hope. I really need them at this point and this site is the only place in the world it seems I can get that along with the valuable medical insight from those who...
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    Debra, Thanks for the reply, Yes my Rhmy has...

    Debra,
    Thanks for the reply, Yes my Rhmy has four Weggies and consults with many other Dr's who have created this plan for my situation as the severe ulcerative colitis is kind of driving the bus so...
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    Tom, Thanks for the encouraging support and...

    Tom,
    Thanks for the encouraging support and understanding, again this is the info I was looking for in this thread. It looks like you have had a rough time also. I have not had any cancer just yet...
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    Jana, Thanks for the encouragement and kind...

    Jana,
    Thanks for the encouragement and kind words of wisdom. This is why I came to this site, you and the others here give each of us what we need at the exact time we need it, all we have to do is...
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    Thanks for the info. I must now stay on Humira...

    Thanks for the info. I must now stay on Humira for a year due to my severe ulcerative colitis and I can't start the Cytoxan or Remicade until next year. I have so many pain,aches and cramps I can't...
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    Iritated and unsure !!

    Not sure if you know my story but I have been through and still experience life in another dimension of reality. No I am not crazy but after eleven months of...
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    I have had four RTX infusions (800mg / Double...

    I have had four RTX infusions (800mg / Double dose) each in January 2015, I take 8mg of Methylprednisolone each day along with 15mg Methotrexate each week. I am still not in remission. I am very sick...
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    Hey Sherry !

    Hey Sherry,
    Glad to know I have someone close to talk to now. We should get together soon. I have been really sick lately so I may not reply for some time.

    James
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