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  1. Thread: Two?

    by Mrs.M
    Replies
    0
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    964

    Two?

    Does anyone have experience with GPA and Giant Cell Arteritis?

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  2. Replies
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    11,199

    Hello. If I understand you correctly, you haven't...

    Hello. If I understand you correctly, you haven't been diagnosed yet. If it turns out that you have WG, it is something that you can live with. My husband has had it for twelve years now. He goes to...
  3. Replies
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    44,374

    Oh, dear. My thoughts are with you! I hope you...

    Oh, dear. My thoughts are with you! I hope you find some relief and answers.

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  4. There is. However, the most significant factors...

    There is. However, the most significant factors seem to be b cells and pr3. Best of luck to you.

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  5. Hi! How is your husband doing now? Has the doctor...

    Hi! How is your husband doing now? Has the doctor talked about using Rituxan to treat the WG? If he can't drink much because of his kidneys, the cytoxin could cause long-term problems, such as...
  6. Vdub, What is your B cell count? It should be...

    Vdub,

    What is your B cell count? It should be zero. If it is higher than that, then your disease is active.

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  7. Thread: Hello! :)

    by Mrs.M
    Replies
    20
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    5,436

    Hi Jane! Welcome. In glad that you found us....

    Hi Jane! Welcome. In glad that you found us. Everyone has had great advice. My husband had required aggressive treatment to keep his WG in check. The best thing to do is to get a doctor who has...
  8. Hi MamaEndora, First, I'm sorry to hear that...

    Hi MamaEndora,

    First, I'm sorry to hear that your child has this diagnosis. It's a rough disease, but it's one that can be managed.

    My husband, while not a child, lived in denial about the...
  9. Replies
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    The PR3 is one of the markers that my husband's...

    The PR3 is one of the markers that my husband's doctor uses to determine if the B cells are back. I agree with Alysia. The lower the number, the better. If it rises, my understanding is that...
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