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  1. Thread: Swollen Feet

    by Carmen11
    Replies
    8
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    2,878

    Swollen Feet

    Ok , so my feet have been extremely swollen , I'm on 7.5 mgs pred , 2 =500mg cell cept 2Xd and , on blood pressure med, anti anxiety , anti depressant and pain meds as needed ( which is often ) . I...
  2. Thanks Don , I was thinking to myself that it...

    Thanks Don , I was thinking to myself that it seemed like this person had a " tude " but am new and just trying to strike up conversations and get to know and understand other point of views and try...
  3. How many of you think you know what caused this terrible disease to you ?

    Just curious ... I often wonder what led me to become a carrier of Weg's . For me , I have a strong feeling it was some kind of mold ..I lived in a duplex for 5 years and every time it would rain...
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    Can't sleep ...what am I doing wrong ?

    It's almost 4am and I'm still awake , this has been going on now for months ...what am I doing wrong ? I was diagnosed June 17th 2013 and I'm down to 7.5mg of prednisone and transitioning to Cell...
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    I can't figure out how to search ..

    I can't figure out how to search ..
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    1,968

    Atlanta , Georgia

    Just curious if there are any fellow Weggies in Georgia ?
  7. Thread: exercise

    by Carmen11
    Replies
    29
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    7,816

    What is your diet plan ?

    What is your diet plan ?
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    Hi Geoff , thank you so much for writing to me ,...

    Hi Geoff , thank you so much for writing to me , I am so happy to meet people who understand about our disease and can give me advice and encouragement. It's only been a little over a year since I...
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    Hi Lily , Your story really resonates with me ....

    Hi Lily , Your story really resonates with me . I hate hearing that you hurting like this but at the same time it gives me a sense of validation knowing that there is someone else out there that is...
  10. Replies
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    My dosage is 10mg , my doctor has been tapering...

    My dosage is 10mg , my doctor has been tapering it very slowly . I did fall the other day going up some steps and kinda landed on my my stuff I was carrying on my chest . I don't know if possibly...
  11. Replies
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    Severe chronic pain

    Hi all , I was wondering if any of you have experienced pain while being weaned off Predinisone , not only am I in pain but it seems to move around from the top of my spine to right above my tail...
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    Hi , Welcome to the forum ..your story is a...

    Hi , Welcome to the forum ..your story is a roller-coaster ride ! I can totally relate , I'm new on here by 2 days but it's now been over a year since my diagnosis , but just in these few days I am...
  13. Replies
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    I am trying to adjust to my new normal , but now...

    I am trying to adjust to my new normal , but now that I'm being tapered from pred and starting the Cell Cept my new normal is changing again . I'm having more aches and pain due to the high long term...
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    11,358

    I can't say it enough that I am already feeling...

    I can't say it enough that I am already feeling like I'm NOT alone and that there people out there who do understand and this validates my worries and gives me a lot of hope. I know I'll sleep better...
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    Why are you having heartburn ? About a few months...

    Why are you having heartburn ? About a few months ago , I had to have my gall bladder removed , it all started with severe heartburn , it turned out I had stones , so they ended of removing my gall...
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    All of you have given me hope .. something that I...

    All of you have given me hope .. something that I had let fade , but I feel validated now and realize I should have became a member sooner . Thank you soooo much !
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    Thank you Jayne , I can already say I feel a lot...

    Thank you Jayne , I can already say I feel a lot more sane knowing I'm not alone. I know my family loves me but they seem to think I'm just complaining to be the center of attention. They have no...
  18. Replies
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    Thanks ! I'm getting prunes ASAP !

    Thanks ! I'm getting prunes ASAP !
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    Thank you so much for the great advice , I will...

    Thank you so much for the great advice , I will def be buying some prunes and getting some vitamin D , is that best taken as a supplement ? Aso , where can I get the Hamastix ? Thank you again and...
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    Hi , I can't thank you enough for replying and...

    Hi , I can't thank you enough for replying and giving me hope . I'm so glad I joined the forum and truly feel this is helping me already . Hope you're having a great day !
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    Thank you very much for replying , it makes me...

    Thank you very much for replying , it makes me feel so much talking to people who understand =-)
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    Thank you sooooo much for responding =-) Hugs...

    Thank you sooooo much for responding =-) Hugs back to you !
  23. Replies
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    Will things get better ?

    Hi , my name is Carmen , I was diagnosed last June 2013. I drove myself to the ER on June 13th after months of sinus problems and which had lead to completely not being able to smell , I'd been very...
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