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Thanks Karen,

It turns out that I've been diagnosed with ITS (Idiopathic Tracheal Stenosis), not Wegener's.

Going in for my second dilatation within the next two weeks - inflammation seems to...

Nothing new to report...I have a follow-up scheduled with my ENT after rheumy couldn't confirm Wegener's. I want to schedule my 2nd dilation as this time my ESR is down. I'm optimistic that this...

Hello all,

Hope everyone is doing well as can be.

Well, I'm just writing to provide an update since last post...should anyone be interested. :P

I had my follow-up with the rheumy. Was able...

Hello all,

Short update to follow. Vacation seems to have helped immensely - went into the ocean every day and it seems to have helped with allergy like symptoms. They went away completely.
...

Wow, same situation here, with the voice being affected (the inflammation so close to the voice box.) That's actually the reason they can't do re-sectioning - because it's too close to the cords. Now...

I didn't have the privilege of interacting with Trish. My deepest, heartfelt condolences to her family and friends. Wherever she is, she knows more than us...

Thank you, MikeG-2012. You guys and this site are very much appreciated.

You're absolutely right. Things aren't that bad. :) Thank you for the words of encouragement.

Hello,

First of all, thank you all to those that replied. I appreciate the support and the amazing resource function of this forum.

I'm just writing to provide an update on my very first Rheumy...

Thanks for the reply. Appreciate the support.

Hello all,

I'm writing this because I'm at my wit's end. Up till last night, I was going through psychological torture. I had a dilation done in December, am still undiagnosed, have a trip planned...

Sophie,
So elated to read someone here has had a happy ending. Thank you for sharing this.

Thanks for the feedback drz. Actually, I don't know what to make of this. Everything I've ever read about Wegener's speaks of symptoms I don't and have never had. I do have allergy like...

Thanks for the message chrisTIn@. I appreciate the support :)

Truth be told, a part of me has kissed singing goodbye...or at least I'm beginning to. Not sure how I'll be able to recover well...

Initial diagnosis was heading toward Idiopathic Stenosis, but then for some reason they changed their minds. My fear is that they want it to Wegener's for the sake of solving the issue. It's harder...

Thank you mrtmeo. This really did help. :) I've skimmed it but will definitely read it more thoroughly soon. Another thank you: I was also referred to an awesome YouTube video link by Swb21188 that...

But seeing that is should have been the place, reposting here::sad:
Hello out there! I'm new...and here to divulge and vent. Hopefully the rage will pass soon...

Where to start? Sorry if this is...

I'm 35, a single-mom of a very active 10-year-old. And I used to sing. I had trained classically for close to 20 years...life was great...up till recently. I have yet to be diagnosed... glad to find...

Thanks mishb. I am just getting the hang of navigating this site...feeling a tad overwhelmed by all of this. Really appreciate all of the replies. Will definitely go to the new members area and start...

Thanks jvilner. How did you deal with the depression symptoms? Did they lesson once you found yourself on the road to regaining control?

Hi There, I'm replying to this thread because of the title caught my eye. It's what I can really relate to. I'm 35, and a single mom of a ten year old. So my life feels like it's been on hold for the...