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  1. Replies
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    Pj, my friend, I know! This horrifys me, cause...

    Pj, my friend, I know! This horrifys me, cause I'm crazy enough naturally! Ya, the mental effects scare me. I totally agree and its a proven side effect of pred. I wish you all the best, this...
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    In Canada they are recommending a test called,...

    In Canada they are recommending a test called, gFobt. It's a fecal occult blood test to detect colon cancer... Great to walk away from a test knowing you're kidneys will be, just as they were when,...
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    Vdub, I have an article that explains how and why...

    Vdub, I have an article that explains how and why wegeners effects the teeth, but unfotunately, I can't upload here. If you want to contact me off list, I can send it and you can post it. It warns...
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    Sangell, no a regular prep would be a disaster...

    Sangell, no a regular prep would be a disaster with kidney involvement, let alone extensive kidney involvement. Ifyou look even on the back of say mirelax, it warns right there on the back may cause...
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    Plummer, if the doctor stopped the cellcept, then...

    Plummer, if the doctor stopped the cellcept, then it would make sense that this would stress her system enough to trigger a flare? Just from studying here it seems any change in meds can create a...
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    Pj, hi. I was curious how you know its from the...

    Pj, hi. I was curious how you know its from the pred? I ask, because I'm not on pred, just my natural supply in excess due to adrenal disease. Nevertheless, never been on pred, and all my mouth...
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    Just adding some frustration here. Doctors are...

    Just adding some frustration here. Doctors are way to quick to throw antibiotics at things! This is so wrong! Unless they cultured and found the infection, I don't like this, and I see it over...
  8. Thread: Elizabethkingia

    by debra
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    Drz, you're comment made my day! Good thinking...

    Drz, you're comment made my day! Good thinking Drz! Just another thing to add to the long list, huh? Debra...
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    Disintergrate, is exactly what hapoened before...

    Disintergrate, is exactly what hapoened before the bottom fell out Drz! When mentioning this, the doctor and dentist thought I was nuts! I could see and feel it... Things i. Didnt think were...
  10. Thread: Me Too!

    by debra
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    Sangell, wow, im sorry for all youve been...

    Sangell, wow, im sorry for all youve been through. I hear you on the er, i guess when youve almost died there, it leaves a pretty horendouse taste in the mouth... Im so terrified now of the er,...
  11. Thread: Name change

    by debra
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    Deb, i agree, when in trouble i was calked Debra,...

    Deb, i agree, when in trouble i was calked Debra, always Deb the others, or Debbie... Since im in trouble, decided to use my real name! Deb, hope i didnt incoveinance you... Oh, and i think...
  12. Aylasnan, hi... This is only my personal...

    Aylasnan, hi... This is only my personal opinion, okay? I remember you're symptoms and yes it looked like wegeners symptoms, but only a doctor can say, as you know... My blood labs are completely...
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    Hope, yes I will pray for you, already done and I...

    Hope, yes I will pray for you, already done and I will continue... I wish the best for you... Debra...
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    Jax, hi... I meant to ask, did you have any pain...

    Jax, hi... I meant to ask, did you have any pain with youre mouth involvement? I ask because i had none, whatsoever, and this just seems odd... I guess when you think in terms of tissue death, not...
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    Mark, have you're doctor check you for tpo...

    Mark, have you're doctor check you for tpo antibodies against hashis, because graves is just the flip side of hashis. Hashimoto thyroiditis is what it means... When I hear a doctor so quick to rule...
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    Deb, its more than likely because eighty percent...

    Deb, its more than likely because eighty percent of our immune system is in the gut. Before I go on, no I'm not a doctor and I'm grateful, and its my area of study for many years. Also since I...
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    Jax, youre very welcome... I thank God for...

    Jax, youre very welcome... I thank God for leading me to this forum, back just about four years now, and when i read teeth problems i was connecting the dots, along with every weird symptom, finally...
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    Yes, Had, I do! I must point out, wegeners...

    Yes, Had, I do! I must point out, wegeners itself can wreak havok on the teeth and gums, and bone... Its hard figuring out, what's what, but I can do this easy, because I'm not on pred! I am...
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    Deb, the ampules are well, small ampules that are...

    Deb, the ampules are well, small ampules that are for single use, keeps it more sanitary, ect. Prevents coming in contact with air, as well as what may come in contact with the eye... Someone said,...
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    God bless you, Alysia... Beautiful writing... ...

    God bless you, Alysia... Beautiful writing... We miss you, Phil! Debra...
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    Alysia, yes i had this pain with my case, also...

    Alysia, yes i had this pain with my case, also the broken blood vessels, ect. Pain was so unbearable that the emergency eye doc, gave me chemo, in my eyes, then gave me the drops, which says alot,...
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    Keith, Twinkies I love, not to nuts on the twenty...

    Keith, Twinkies I love, not to nuts on the twenty year shelf life though! Amazing huh? Keith b vitamins are safe, excess is peed out, so doesn't build to toxicity... Really dig, that neon pee,...
  23. Dee, hi... I changed youre name! No one can say...

    Dee, hi... I changed youre name! No one can say for sure, but opinion only, of coarse and in my opinion, yes it sounds like it could be... I would like to lie to you, however i cant, and would...
  24. Thread: Anion gap?

    by debra
    Replies
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    850

    Very, very interesting! I noticed this with...

    Very, very interesting! I noticed this with myself and a friend here, and mentioned it to him... It seems from what I've read, its pretty common in wegeners, my question is why? I've been...
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    Yvonnea, hello. In my opinion, absolutely! ...

    Yvonnea, hello. In my opinion, absolutely! Inflammation is wegeners and the ears are effected a lot as I'm sure you know... My ears especially under stress will become blocked, hearing will go...
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