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  1. Replies
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    Social Security Disability

    Is there anyone that is not on dialysis that has been approved to receive Full or Part Time Social Security Benefits for Wegener's Disease?
  2. Thread: Imuran

    by amann8506
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    Imuran

    Anyone have any experience with this drug? Rheumy just prescribed today - a better alternative than methotrexate because husband and I were trying to conceive. That has been placed on hold, but I've...
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    Welcome Lindsey! So glad that you found this...

    Welcome Lindsey! So glad that you found this group - everyone is very helpful and informative. I was diagnosed in 2011 after a week in the hospital - my first hospital admission diagnosis was...
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    Good luck at your appointment! Hope all goes...

    Good luck at your appointment! Hope all goes well:)
  5. Thread: Trach

    by amann8506
    Replies
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    Trach

    Has anyone had to have a trach put in due the the subglottal or tracheal stenosis? I had a dilation done 2 wks ago and have to have ER dilation done over the weekend. 2 weeks seems like a VERY short...
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    I seem to be coughing up more stuff this time....

    I seem to be coughing up more stuff this time. Which I'm assuming is a good thing. I did get a minor year during the dilation, so my throat is pretty sore and it's hard to swallow. Hoping I can go...
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    I do rinse Phil. Twice, sometimes 3 times a day....

    I do rinse Phil. Twice, sometimes 3 times a day. I also have a saline spray with Mupirocin in it to help keep things moist. But apparently it's not enough!
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    Just had another ER dilation done yesterday and...

    Just had another ER dilation done yesterday and they keep me overnight with a mask for humidity. I had so much crusting, I could not hardly breathe again. Pictures showed almost no opening!
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    Hey Phil - I had the balloon dilation done (laser...

    Hey Phil - I had the balloon dilation done (laser cuts and the balloon). I'm thinking the bloody crusts are from draining through my nose. I had 2 windows put in my sinuses for better drainage. Dr...
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    Have an amazing time! Hope you feel better and...

    Have an amazing time! Hope you feel better and get to enjoy it:)
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    I hate that part! It's the worst!

    I hate that part! It's the worst!
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    Welcome! This is an awesome place for venting and...

    Welcome! This is an awesome place for venting and information. Can you tell us more about your husband's situation?
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    Stupid Throat

    I had a throat dilation done 2 weeks ago and last night was having a VERY hard time breathing. After not sleeping much, and starting to become very scared, I called the throat specialist. He saw me...
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    That is awesome news! Congratulations:)

    That is awesome news! Congratulations:)
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    Multiple Dr's?

    Just curious as to who everyone sees for their Wegener's. I have a Rheumatologist and 3 different Dr's at an Ear Nose and Throat Practice for each of those areas - Ear, Sinus and Throat. Do you all...
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    I always have to call to get my results! Hope you...

    I always have to call to get my results! Hope you get some answers soon and feel better:)
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    Wegener's & Pregnancy?

    I'm sure you are out there, but I'm looking for advice on becoming pregnant. I am 30yrs old and was diagnosed right after a week in the hospital after Christmas 2011. I have a beautiful daughter who...
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