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Type: Posts; User: JBee

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    Re: Let's talk about "limited" Wegeners...

    Luckily I've only come across one doctor who was a bit dismissive. I had lung and hearing damage as well as upper respiratory problems. We all know that GPA can flare up and it may not be limited...
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    Re: Ear, Nose and Eye involvement.

    Hi Pete, I'm having SLT next week on both eyes and have been a bit nervous. Thank you so much for explaining how your procedure went. Fingers crossed I'll have a good outcome too.
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    Re: Ear, Nose and Eye involvement.

    Hi
    I've had high eye pressure for over 20 years, well before weges came along, and have been monitored for that time. Unfortunately my ophthalmologist has confirmed that I now have glaucoma. I...
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    Re: Starting Methotrexate

    I had MTX and pred and felt better fairly quickly. Remission probably took 6 months or so, it's hard to be exact. I was lucky and have no side effects from the MTX. Occasionally tired the next day...
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    Re: High calcium in urine

    Hi Alysia
    I heard an endocrinologist being interviewed on the radio this morning and she seemed to be discussing your issues. She was talking about the parathyroid glands which sit behind the...
  6. Thread: Hi From Oz

    by JBee
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    Mark, like you I can remember feeling so...

    Mark, like you I can remember feeling so frustrated with my slow progress in the first weeks and months after diagnosis. My rheumy reminded me that this is a serious illness and I would need some...
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    Hi Fiona, I had similar ear pain when first...

    Hi Fiona, I had similar ear pain when first diagnosed. The pain comes from the pressure when the eustachian tubes are blocked. I had grommets inserted but the pressure in my ears expelled the first...
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