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  1. My rheumatologist says I can have another child...

    My rheumatologist says I can have another child if I want to we just have to monitor me very closely, Having a OBGYN that will know or lean and work closely with your wegs doctor is a help also.
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    I had my surgery two years ago and have really...

    I had my surgery two years ago and have really large hole in my septum my doctors chose not to do the button because of risk of infection. It does have to be cleaned out at least two to four times a...
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    my story sounds so much like yours. I had a...

    my story sounds so much like yours. I had a dialation and a mucus plug was in my air way. I actually was unable to move it and passed out they had to put me on a vent until they figured out what had...
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    so so glad to be getting keys to our first newly...

    so so glad to be getting keys to our first newly purchased house:) hoping this will help with my anxiety of being at our old place and help me move forward.
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    ready for life to get easier

    I am finally back home after a week in the ICU. I am happy to be home but the medications keeping me up all hours and the flashbacks are going to drive me crazy. I just wish life would give me a...
  6. Thread: New symptom

    by mama2005
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    my tongue has bleed but it doesn't last long and...

    my tongue has bleed but it doesn't last long and its only on spots where are raw. my tongue does this because of all my breathing treatments though. hope they get this figured out for you.
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    The breathing they actually think was a scab from...

    The breathing they actually think was a scab from my throat which blocked my air way. They pumped three fluid iv bags from my lungs at the hime er. The home er said it was pulmonary flash edemia but...
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    Cleveland clinic trip

    On monday i went to my appointment which i was admitted to hospital so i could get the rituxan my insurance is a pain. Well while in my ent decided it was time for a throat dilation. Surgery went...
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    been off all meds for about 2 maybe 3 months so...

    been off all meds for about 2 maybe 3 months so its not med induced could be from stress but I am not thinking it is.
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    Headaches and light headed

    So in the last week my headaches have increased where I am taking the above average of dosage of Advil to stop the pain and ontop of it have had a few episodes of light headed is this part of the...
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    Good luck with your surgery. I had mine done a...

    Good luck with your surgery. I had mine done a year ago on the 28th and am so pleased with the end results. Hope for a quick recovery for you and hoping for less stress.
  12. Thread: Young people

    by mama2005
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    hope that she can find someone close to age it...

    hope that she can find someone close to age it really does help to know someone else your age knows how you feel.
  13. Thread: Bad day

    by mama2005
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    hope you get to felling better and the saddle...

    hope you get to felling better and the saddle nose and pictures is very very annoying I would not let anyone take my pics for two years till I got it fixed. hoping for a better day tomorrow.
  14. Thread: Hot Flashes?

    by mama2005
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    yes my doctor is going to see me next week and...

    yes my doctor is going to see me next week and start me on meds for this. I have not been on pred for awhile so the hot flashes cant be med related that was what I thought at first but doc said it...
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    mishb my daughter is a exact replica of me so yes...

    mishb my daughter is a exact replica of me so yes my nose looks very similar to what i had. my daughter who is almost 8 says that she is so glad to look like her mom agian. :) I am out doing lots...
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    yes that is my new nose and my daughter. and it...

    yes that is my new nose and my daughter. and it is a tube replacement for my eyes that continuesly water. it drives me abosolutly crazy.
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    Dacrocystorhinostomy

    Ok doctor is going to set me up to do the DCR has anyone had this done before and how long do you have to be out of work? Is it painful?
  18. Thread: Hot Flashes?

    by mama2005
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    Hormone levels are being tested and thyroid came...

    Hormone levels are being tested and thyroid came back now as hypothyroid not sure if Wg is a factor to this or not we will know what the hormone tests say later.
  19. Thread: Hot Flashes?

    by mama2005
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    I am hoping not menopause I still want another...

    I am hoping not menopause I still want another child in the future...and hoping not wg either. I am heading to the doctors in the am to see whats going on.
  20. Thread: Hot Flashes?

    by mama2005
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    Hot Flashes?

    I have began getting hot flashes the last week is this common with WG? I am not having any other symptoms other then headaches and hot flashes wondering if this is WG or something else any advise?...
  21. Thread: my journey

    by mama2005
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    my journey

    My story is much like everyone else’s. I started havingcommon cold symptoms that I could not get rid of. I went to my local familydoctor she gave me antibiotics and two weeks later I was back with...
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    subglottic stenosis and dialation

    Went to my wegs doctor today and I was diagnosised with a subglottic stenosis last year in November well my wezzing and my shortness of breath has continued to become worse so I brought this up with...
  23. Thread: roaming pains

    by mama2005
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    roaming pains

    Started having rib pain similar like if i did a ton of sit ups. I also have lower back pain. none of this has been here before and I can not think of anything I have done that would cause this could...
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    yes i was the one about it collapsing. my doctor...

    yes i was the one about it collapsing. my doctor used a bit more cartlidge in one are to help it. now its doing great and starting to look like my self or close to.
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    congrats. I had the surgery in febuary this year....

    congrats. I had the surgery in febuary this year. it really is worth it. The surgery is a long time I was under for close to 7 hours. they used rib bone, rib cartlidge, and a metal plate for me. my...
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