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Type: Posts; User: mater

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    ENT in the US who knows GPA well

    I'm looking for a name of an ENT who knows the hearing and sinus related issues of GPA well so that our ENT could consult with that doctor.

    Thank you,
  2. How long can you be on 60mg prednisone and can you go back up from 50?

    2+ months ago my daughter(19) had significant hearing loss and cough and then some indicator of disease activity in lungs on CT scan. Labs were fine, but they finally figured out this is a relapse...
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    I have wondered about diet and after reading your...

    I have wondered about diet and after reading your post I started a thread in the general forum called How to tell if dietary changes are effective
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    How to tell if dietary changes are effective

    When my 15 year old was in the hospital someone sent us an article about anti-inflammatory diets. It is hard at 15 (and would be for me) to be motivated to change your diet drastically, to give up...
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    My 15 year old daughter was diagnosed in...

    My 15 year old daughter was diagnosed in December. Since she is older, they were able to give her shots to suppress ovulation before the CTX. I don't know how well that works to protect her...
  6. Thank you for the responses, everyone. I only...

    Thank you for the responses, everyone. I only received a notification for this last message, so I hadn't checked the forum until today. It was good and hard to watch that video. It is a year ago...
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    Poll: What do you mean by long term? I didn't vote,...

    What do you mean by long term? I didn't vote, because I wouldn't say that we have gone long term yet. My daughter(16) has had 2 rounds, 6 months apart and the plan is for 1 or 2 more years of every...
  8. 15 year old daughter diagnosed 10 months ago

    About 12 months ago my 15 year old daughter began having headaches and minor cold symptoms that didn't go away. She was treated with several antibiotics for sinus infection and then a 6 day course...
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