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  1. Replies
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    Hi Tammy, and Welcome - - - Glad that you have...

    Hi Tammy, and Welcome - - - Glad that you have found this site, sorry to hear of your entrance into the world of Wegs. Glad also to know that you are reading some of the personal stories herein - -...
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    Debra, My vote in your survey request: no,...

    Debra,
    My vote in your survey request: no, it's not simply your anxiety. I too feel that three months between visits is way too long. If you need the MTX, then the Wegs is too close to the...
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    Hi Jul, As has been noted, it's not...

    Hi Jul,
    As has been noted, it's not uncommon for AI folks to have more than one AI condition, such as Graves and Wegs. Personally, I had the Graves dx for five years before the Wegs dx...
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    "personal renovation project".... Good...

    "personal renovation project"....
    Good one, Al; that's what we're up to alright. The new us - - might just as well try to make this new house that we're somewhat trapped in as comfortable...
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    Hi Mel, After seven months of daily, oral...

    Hi Mel,

    After seven months of daily, oral Cytox followed by five months of weekly Meth with a slow pred taper I encountered a hospitalizing flare which then led to ramping up the pred once more...
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    Hi Sangye, Yes, seems like there's always...

    Hi Sangye,

    Yes, seems like there's always something new to learn along this journey of the Wegs. The nurses at the infusion center clued me in. Wanted to know my last INR, when it was taken...
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    3,059

    No Wegs meds - - - oooh that sounds sooo nice! ...

    No Wegs meds - - - oooh that sounds sooo nice! Good for you, Dale.
  8. Replies
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    Warfarin and Rituxin

    Hi,
    In another thread, we were writing about the interaction of Bactrim and Warfarin (caumadin). Since I haven't seen it mentioned herein (it may very well be hidden somewhere in all these...
  9. Sangye - -Thanks. I half-way suspected that, I...

    Sangye - -Thanks. I half-way suspected that, I guess (the docs' awareness and factoring it into all else they're keeping tabs on with me). They do insist on INRs regularly; it was weekly for awhile...
  10. Kami - - I see several doctors for various...

    Kami - - I see several doctors for various reasons and none have ever mentioned a problem with my taking Bactrim and warfarin together (and they are aware of my doing so). I haven't read of any...
  11. Replies
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    Sorry, Trudy, that I can't be of direct help...

    Sorry, Trudy, that I can't be of direct help because I haven't experienced your pattern. I do have PN, but not sciatica and don't have the type pain you describe. My PN (which is on the severe side)...
  12. Thread: Member map

    by Thakator
    Replies
    13
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    3,259

    Yes, we could all go to Michelle's bash to...

    Yes, we could all go to Michelle's bash to celebrate her achievement, welcome Al as he arrives for his Australian vacation - - - and take a dip in that cure stuff while we're there. Yep, that'ld be a...
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    Reet, So very sorry to hear about the...

    Reet,

    So very sorry to hear about the loss of your father. Please let your family know that there are many of us out here, all around the globe, who may not have met him but who were of...
  14. Replies
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    Drz, Sangye's suspision that increasing...

    Drz,

    Sangye's suspision that increasing problems with PN implies active Wegs comports with what my neurologist told me last month while hospitalized for a flare. He flat out stated that my...
  15. Hope, The pain you feel is very likely from...

    Hope,
    The pain you feel is very likely from the open lung biopsy itself and may not be from granulomas or nodules- - unless, of course, they are unusually large. I had a golfball sized one for...
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    Thank you, Sangye, for the very specific...

    Thank you, Sangye, for the very specific suggestions that you have listed herein for those of us with PN - - you're still the good chiropractor and still helping people with their physical problems....
  17. Hi - - Different strokes for differrent docs, I...

    Hi - - Different strokes for differrent docs, I guess - - mine (a rheumie) put me on a prescription for folic acid at the same time she put me on MTX. Said the MTX did something to it, but of course...
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    Hi Nicole, Chris has it right (per my...

    Hi Nicole,
    Chris has it right (per my experience and study); start low like 7.5mg for a few weeks and move up steadily to the 20's then hold there. Ron
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    "It takes time to find the patterns and figure...

    "It takes time to find the patterns and figure out what is wg related and what is not. But when you do, it can be very helpful in identifying flares vs. smouldering." exactly right, Chris, exactly
  20. Replies
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    David, Another reason to get the old Wegs...

    David,
    Another reason to get the old Wegs under control - - peripheral neuropathy (PN). This is not to say that your numbness will progress to a point of causing you difficulty in ambulation. ...
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    Hi Chris, No, you weren't unclear and I...

    Hi Chris,
    No, you weren't unclear and I didn't take your statements in any negative way; I've read your postings for quite some time now and am well aware that you are well aware of what you...
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    Hi Chris, I'd like to add an "Amen" to Al's...

    Hi Chris,
    I'd like to add an "Amen" to Al's point about the smouldering aspect of Wegs. - - for your consideration and for that of others who are perhaps new to this. Sometimes things do just...
  23. Replies
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    Hi Kirk, Yes, the old Wegs is very much a...

    Hi Kirk,
    Yes, the old Wegs is very much a nasty disease - - but, we must admit it certainly is an interesting one! Ron
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    Yes, Karen, your history and symptomology...

    Yes, Karen, your history and symptomology certainly makes us think of Wegs. Mine is primarily in the lungs so I can't comment with any first hand knowledge regarding the upper respitory system. I...
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    No, I'm no cook but I have heard that mushrooms...

    No, I'm no cook but I have heard that mushrooms boost the immune system (as do certain supplements and teas). Probably easy to research though. Good luck, Nancy.
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